Jessica & Ocrevus : hi my name is Jessica... - My MSAA Community

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Jessica & Ocrevus

Kaiyabear profile image
11 Replies

hi my name is Jessica & I have had M.S since I was diagnosed @ 23.

I haven't had anything like that happen to me. I've had 5 doeses so far of ocrevus & find it the best medication currently. I tolerate it very well. I've had the m.s disease now for 17yrs & through 5 different drugs that didn't work like this one. I'm happy 😊 and thankful that the 6th drug (ocrevus) patients have this newer drug!!

let me know everyones story! i love reading about everyones story!!

Jess

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Kaiyabear
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11 Replies

Welcome to our wonderful site!

greaterexp profile image
greaterexp

Welcome to our "little" family of a few thousand. I think you'll find lots of information, encouragement, and even friendship here. Even though you were diagnosed years ago, it can feel so good to get together with those who really understand, even though it may only be online. You'll have lots of good information to share, too.

mymsaa.org/

carolek572 profile image
carolek572CommunityAmbassador

Welcome to this forum, Kaiyabear where you can find a lot of info! I look forward to hearing more from you, and in the meantime, look around to discover all that is available to you. Again, welcome! :-D

12345_- profile image
12345_-

Jess,

I have had MS for 30 years (age 34 when diagnosed). Have been taking Ocrevus for about 2 years now. Working well for me also. Still walking with a walker. But the fatique is my biggest problem now, along with leg spasms at night. Still fell BLESSED after 30 years to be doing as well as I am. Having the Lord in my life has been my biggest help.

anaishunter profile image
anaishunter

welcome. Thank you for sharing you're story.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Welcome to our own little place of MS crazy Kaiyabear you were young when you were dx'd! I'm so sorry! I don't think it stopped you tho?

I have only had one dose of 'O' my next is on Nov 22. I'm really glad it's working for you! 💕🌠

Raingrrl profile image
Raingrrl

Hi Kaiyabear ...Welcome! There is a broad spectrum of people dealing with MS here. We are a wide range of ages and experiences so you are sure to find people that can empathize with your experience. I’m also on Ocrevus and getting ready for infusion #5. I switched to Ocrevus after being on Tysabri successfully for 5 years. I had to switch due to being a JCV+.

twooldcrows profile image
twooldcrows

welcome to our wonderful world that we can all relate with you and your MS ...i too have been on Ocrevus since 2017 haven't had any problems with it and i feel so much better after being on it ..no more shots is the best of this world of this monster they call MS...enjoy life with all of us ...love and happiness and laughter is very welcome like funnies ...smile helps with making someone else's day brighter ...

CraigS profile image
CraigS

I wish I could share your enthusiasm for Ocrevus, I actually have no idea if I’m getting any help from it. My condition continues to worsen but I don’t know if the Ocrevus is slowing it down. I’m not willing to give it up in case it’s actually working. PPMS doesn’t have good days, you’re the best you will ever be each day you wake up. It’s a challenge to see where you are on a daily basis.

However, when I hear of people getting results, it gives me hope.

Thank you for that.

Craig

rjoneslaw profile image
rjoneslaw

welcome

I'm on O and it's working well for me

mm1527mm profile image
mm1527mm

Welcome! Diagnosed july 2019 @ 28 this is a great group had my first two half doses of ocrevus

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