hi my name is Jessica & I have had M.S since I was diagnosed @ 23.
I haven't had anything like that happen to me. I've had 5 doeses so far of ocrevus & find it the best medication currently. I tolerate it very well. I've had the m.s disease now for 17yrs & through 5 different drugs that didn't work like this one. I'm happy 😊 and thankful that the 6th drug (ocrevus) patients have this newer drug!!
let me know everyones story! i love reading about everyones story!!
Jess
Written by
Kaiyabear
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Welcome to our "little" family of a few thousand. I think you'll find lots of information, encouragement, and even friendship here. Even though you were diagnosed years ago, it can feel so good to get together with those who really understand, even though it may only be online. You'll have lots of good information to share, too.
Welcome to this forum, Kaiyabear where you can find a lot of info! I look forward to hearing more from you, and in the meantime, look around to discover all that is available to you. Again, welcome!
I have had MS for 30 years (age 34 when diagnosed). Have been taking Ocrevus for about 2 years now. Working well for me also. Still walking with a walker. But the fatique is my biggest problem now, along with leg spasms at night. Still fell BLESSED after 30 years to be doing as well as I am. Having the Lord in my life has been my biggest help.
Hi Kaiyabear ...Welcome! There is a broad spectrum of people dealing with MS here. We are a wide range of ages and experiences so you are sure to find people that can empathize with your experience. I’m also on Ocrevus and getting ready for infusion #5. I switched to Ocrevus after being on Tysabri successfully for 5 years. I had to switch due to being a JCV+.
welcome to our wonderful world that we can all relate with you and your MS ...i too have been on Ocrevus since 2017 haven't had any problems with it and i feel so much better after being on it ..no more shots is the best of this world of this monster they call MS...enjoy life with all of us ...love and happiness and laughter is very welcome like funnies ...smile helps with making someone else's day brighter ...
I wish I could share your enthusiasm for Ocrevus, I actually have no idea if I’m getting any help from it. My condition continues to worsen but I don’t know if the Ocrevus is slowing it down. I’m not willing to give it up in case it’s actually working. PPMS doesn’t have good days, you’re the best you will ever be each day you wake up. It’s a challenge to see where you are on a daily basis.
However, when I hear of people getting results, it gives me hope.
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