Post 539 Try Harder 10 Oct 2019 - My MSAA Community

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Post 539 Try Harder 10 Oct 2019

RoyceNewton profile image
3 Replies

Try harder, "NO" harder. ms is not meant to be an easy disease, merely taking the strongest Disease-Modifying Therapy (DMT) is not the only answer for your next many years of sickness. It will take more than that, much much more. It will take "YOU" learning your disease, learning your bodies reactions to this disease, learning how to manage a life with ms and learning what to do when things go sideways.

Yes, there most certainly is a lot of learning to do. After twenty years, I am not sure that I have got it all figured out yet, and I have a pretty controlled life. That being the case do not think that "YOU" my ms sibling are going to get out of it easy. "YOU" have to make an effort, "YOU" have to try harder and keep trying harder. Perhaps not every second of every day but "YOU" at least have to pay attention. When I go to the grocery store, I get a small trolley. Not because I am going to buy anything but as a stability device. I have learned where customer service is if I need help. I know where the toilets are in most places I go to. If I do not, it is the first thing I find out. Not because I need it, I am after all wearing my protective underwear, but it is a good habit to have. I am trying a little harder to make my life easier with ms. Twenty years and it does not have to be hard. Remember, I like "YOU" are continually striving for a quiet life of boring.

I want to say one-day "o I had ms, it was very boring, it merely took a while to get it that way, but I did". ms takes effort, constantly being aware of your surrounding, your behaviour and paying attention to your end goal. Between times look after yourself, do what needs to be done to survive and live a great life every day. This condition need never be the end of "YOU" There can be a bright future where "YOU" very slowly trudge downhill on your ms journey. There is no need for steep cliffs. Make a slow boring downhill decline your aim, because unfortunately, this condition demands that we go downhill, and there is nothing that can be done about that. Believe me, I have tried and tried very hard.

Royce (the ms writer)

try harder, and aim for that boring, uneventful ms life

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RoyceNewton profile image
RoyceNewton
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3 Replies
twooldcrows profile image
twooldcrows

said well and honest....some won't enjoy it but ha it is the truth but we can still enjoy our lives it isn't over ...just a little slower....have a wonderful day ....

RoyceNewton profile image
RoyceNewton in reply to twooldcrows

you as well

carolek572 profile image
carolek572CommunityAmbassador

Adaptability is key, and a positive attitude! Inspiring post, Royce :-D

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