G'day my name is Royce, I am not a doctor or any medical professional. Nor am I an employee of anybody. I have had Relapsing-remitting ms (RRms) for a little over twenty years, exactly how long I do not care. What I say is based on my experiences, and I hope this is the type of advice I wish somebody had given me long ago. I am also not trying to sell anything.
I like to refer to us as sisters and brothers as the case may be. I capitalize "YOU" as "YOU" are what is important certainly not me. Having made myself sort of clear, start a ms log. When were "YOU" diagnosed (Dx'd), what tests have "YOU" gone through, how many second opinions have "YOU" gotten, also who and where. The more extensive at first, the better. Mine way back when was very extensive and quite odd. As time passes "YOU" will start to know what is essential and what is not. Having this written record will assist "YOU" in knowing how your ms is progressing. If medicines are doing what is wanted and expected or just a waste of time and money, importantly make a list of all your medicines. When "YOU" take them and what dosages. I suggest next to your computer and make sure somebody knows where they are. Having overdosed (Od'd) several times, the paramedics love this it makes there life more manageable.
Our illness is difficult, we do present a dilemma to medical professionals. We can not be cured, and we keep getting worse. All be it slowly as we are on Disease-Modifying Therapy (DMT) the strongest that we can get. For all of us RRms people, this is a livable condition, and with careful, smart choices, we can live very well.
Remember always that this is a chronic, incurable, progressive illness. After twenty years, I am still waiting for my progression to take effect. I suppose that DMT from day three does work. Start a DMT take notes and smile it truly will be okay, ups and downs, but "YOU" can cope with this. "YOU" have a very long life ahead of "YOU.
Royce (the ms writer)
another day, another day alive with RRms
