We all have been diagnosed (Dx'd) with a chronic progressive, incurable condition. One which can be treated with Disease-Modifying Therapy (DMT) but will be with us for our very long lives. Some of us have the Relapsing Remitting (RRms) type some are secondary Progressive. Some are Primary Progressive. I am RRms, so I speak to "YOU" RRms family members.
Things have changed, life has changed. It is up to us now to reinvent ourselves. Give yourself time, as much as "YOU" need to find a new life path and to start to follow it. I admit I had a stop and start, but I feel that after twenty years, I slowly began to accept my purpose on our journey. I may be wrong, I never know perhaps there is something else calling me. I am sure I will find out, later when the time is right. For "YOU" perhaps another direction is being called for. This as we all realize, is a lifelong chronic condition. What "YOU" once did and what "YOU" do now and do tomorrow may be very different things.
I do not feel that only one job, one task, in this life is our best option. I feel that being open to new and different options might be our best bet. This, may include career, job and even relationships. Accept that "YOU" and I live on a sea of moving sand. Our days of rock-solid foundations are gone. We all are on a constantly moving surface. Trying to hold everything like we are on solid ground just will not and can not work. It will only hurt us and others in the long run.
Reinvent yourself, your ambitions, your goals and accept that it will change. Love those "YOU" love with all your being. Let them go if they choose to leave. Always love yourself for only "YOU have to live with "YOU". That fear and loneliness at two am is yours. Strengthen yourself, give yourself options. Be willing and accept that this is ms, everything will change one day. That is the nature of our disease.
Royce (the ms writer)
Hold on to your dreams, just not to tight
