It’s been almost three months since I’ve been off meds and two months since my insurance approved the infusion. I’ve call once a week for three weeks to find out what’s going on. All I get is the lady responsible for scheduling is working g on it. Called last week to ask again was told she wasn’t there till Tuesday and did I want to her to call me when she’s back. I said yes because things are progressing and I want to know where I stand. No calls yet. Meanwhile I’ve had minor flares. Right Leg is heavy and I have to concentrate when I use it to much to make sure it moves. Fatigue is worse then ever. Neuropathy occasionally in my hands. I’m so frustrated with this process. I told my neurologist this is the first time in two years I’ve been scared.
Frustration. : It’s been almost three... - My MSAA Community
Frustration.
I’m sorry for the frustration and the fear you’re feeling. Wheels tend to grind slowly, but the squeaky wheel gets the grease, as they say. You’re wise to continue making calls to anyone involved in the process to keep them actively doing their job.
Please keep us posted.
Finally got ahold of the person I needed to. Everything is now scheduled.
That’s terrific! Thanks for letting us know.
Hang in there Smartcloud1981 and keep calling them! Then call them again! ☺️ I'm glad you told your neuro maybe he/she can do something! Be positive! It will happen!🤗💕
My persistence paid off called today was finally scheduled
Way to go!!! When's your appt? 🤗💕
Oh no 😞 Perhaps the stress of the wait is causing the flares. I hope you hear something soon!
I pray things get resolved. Does the drug company have a patient assistance program that can help with scheduling the infusion. Ocrevus does
Finally was scheduled today.
great good luck
How stressful! Stress always causes my symptoms to flare up. Keep calling them as frustrating as it is. Hopefully they will schedule you soon. Two months is a ridiculously long time to wait to be scheduled. Is there another infusion center you can go to? Can your neurologist help move things along?
Got scheduled finally just took persistence
Keep calling!
I feel for you. Dealing with systems can be frustrating.
Smartcloud1981 , I don’t know what infusion you are waiting to get, but if you can call the drug company’s patient assistance line, maybe they can help you. I had a nearly 3 month delay in getting my Tysabri infusions, due to insurance changes, and finally called my Case Manager with Biogen and by the end of the phone call. I had an appointment for the next day!
Finally was scheduled appointment in a week
Oh, thank goodness!
Can your neuro get things moving?
Ditto mrsmike9buffering. The neuro's office can usually get better results. I always have them make any appointments needed, I learned that long ago.
Was finally able to talk to the person I needed to. I just think the secretary was not giving my messages to the right person. I will have my first 1/2 dose in a week
Awesome! I hope it helps you as much as it has helped me. I had no side effects & I am off all of my MS meds other than Ocrevus. Most of my symptoms are now gone & I have energy! I had my first full dose in April & still doing great. Good luck!
when to call your neurologist 
Mylan Glatiramer Acetate
CARE is #1 !
Anxiety, stress,frustration 
