ms is a journey not a single step - My MSAA Community

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ms is a journey not a single step

RoyceNewton profile image
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ms is a journey not a single step. As much as we might yearn for a single test a single medicine, ms in all its forms is not that simple. There is no perfect Disease Modifying Therapy (D<T) no single diet (Swank paleo etc) No simple way to say yes “YOU” are getting worse or getting better or at the rate at which “YOU” are getting worse.

“THERE IS NO EASY\SIMPLY\DEFINITIVE ANSWER”

Perhaps there is one answer and that is that “YOU” and I will have ms in some form until the day we die. I am sorry to say this but it is true I will even put money on it and I do not gamble. I really have a problem with losing, blame my ego for that. I have said that and it is in writing. Print this and prove me wrong, standard bet is one U.S. dollar, provide me Magnetic Resonance Imaging (MRI) proof that “YOU” are cured and I will be glad to pay.

Until that time I have given “YOU” suggestions and ideas as to what “YOU” might start doing to help yourself. So get started, take my dollar from me. There are 4500 of us and I think I can afford that. The challenge has been set.

As “YOU” work to take my money if “YOU” feel that “YOU” are slowing down or having problems there is a chance that “YOU” might be. Have “YOU” looked back in your ms life diary on how “YOU” once were versus how “YOU” are now. Do not rely on your memory as we all know that is really unreliable and can be mixed up by ms. Write it down and refer back to it as the years pass. Realise that there are limitations to everything and everybody not just yourself. I do not mind what type of medical professional “YOU” might talk to, they will NOT have every answer for “YOU”. Sometimes “YOU” have to be your own expert. Of course who but “YOU” know every pain that “YOU” have every thought that runs through your head. Not every fear will come to fruition not every single difficulty that can happen will happen. A lot of them that do happen “YOU” pull yourself together and get through. If anybody ever said that I would cope with Trigeminal neuralgia pain I would have laughed at and said no not me I am not that tough. If anybody had of said that I will overdose on opioids several times and I live, again I would have laughed. I have and as “YOU” are reading this I guess I did survive, so do “YOU” see hear feel what I am saying. As bad as it may seem “YOU” CAN COPE with and LIVE with this condition. Do not despair to much, pull your shoulders back, straighten up and keep taking your nest step, for this is a long journey it will take “YOU” the rest of your life and that will be along time.

Royce

One step at a time ever onwards

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RoyceNewton
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Kenu profile image
Kenu

👍😉🙏 Ken 🐾🐾

carolek572 profile image
carolek572CommunityAmbassador

There is no cure but that doesn't mean that you shouldn't take care of your self by eating right, exercising, and cultivating a positive attitude! Great post, Royce :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

that is certainly true

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