“YOU” learn by asking questions then listening and remembering the answers. If an answer does not make sense ask the person to answer it in away that “YOU” do understand. We all, sorry mostly all, speak english but there are different types of ways that we hear things. Feel free to correct me if my words are mot exactly phrased correctly. Remember I am not any type of medical professional.
Per my memory, some of us paint a picture of what we hear, some of us feel what we hear some of us logically analyse what we hear. For example take a burning fire, some will see the colours some will feel the heat some will understand that wood burns and I guess some may even hear the crackling and feel the heat. A little out there for some, but if “YOU can learn how “YOU” hear. Then communicate this to your significant other and your medical support team. Communication can become a much better two way street. Not somebody just babbling a bunch of sounds that do not communicate anything to “YOU” Do I make myself clear to you feel what I am trying to say do my words resonate and “YOU” hear them do “YOU” get me?
Have a think about it, how do “YOU” hear. Would communication be a lot better if “YOU” were spoken to in away that “YOU” easily understood? This is simply a disease thats asks, no demands of “YOU” that “YOU” never stop adjusting and changing yourself. What is normal today may not be normal tomorrow, even in an hour. As my friend (I can call you that can’t I?) says adapt adapt adapt. Never say I have ms down if I just stay doing things this way, then I will be okay. Relapsing remitting ms is not like that. There are no easy answers or immediate solutions. I have used three different types of Disease Modifying therapies (DMT) I have changed adapted and will continue to because that is the nature of our illness.
It is not easy, but under no circumstance is it impossible. Relapsing Remitting ms (RRms) can be managed. Brought under some sort of control, and lived well with for a very long time. RRms constantly changes and “YOU” should be constantly changing yourself to thwart it. Always be ready to find a new path to reach your long term goals. Disability is not your punishment. Simply an opportunity to find a new path. A new way to get to your goals. Find them and tale them. Be kind to yourself and others and live well.
Royce
This is our journey to take and learn from
