Newly diagnosed (DX'd) 20 Jul 2019 - My MSAA Community

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Newly diagnosed (DX'd) 20 Jul 2019

RoyceNewton profile image
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G'Day and welcome to our family. If "YOU" read this I am under no circumstances a medical professional of any type, nor a therapist either. What I write are my opinions based on twenty years with this illness and living with a young lady who has had it twenty three. We only have Relapsing Remitting ms (RRms) no other type so if "YOU" have them politely ignore me I will not be upset. If "YOU" disagree feel free to do it publicly and politely, manners people remember your manners.

After "YOU" have read my initial comment feel free to read the comments. I am not the only person who has an opinion on what I say, there are some far wiser. Also I may be WRONG. Somebody else may know better I am very far from all knowing.

Okay having said all that go to you tube, look up a Dr aaron boster and watch a few of his shows. I agree with most of what he says but I will add one or two or three things.

1. Start wearing protective underwear. I like depends and Amazon is a great source. "YOU" need not wear them all the time but would "YOU" like to soil yourself at the grocery store. It happens and it is far from easy to cope with/

2. buy two posters. One of the brain and central nervous system showing nerves. Big enough to see is a good idea and put it on your wall as a poster. One of the whole body as years go by this will be a lifesaver.

3. buy a book called GUT by Giulia Enders. Open it and read it. Finished read it again. The University of Utah is currently doing research on gut brain interactions is it not better to be ahead of the curve if "YOU" possibly can?

Now for the good bit, yes I am being sarcastic sorry. This is a lifelong incurable debilitating disease. "YOU" and I will not get better, likely worse. How well "YOU" treat yourself and how quickly will determine your future in thirty, forty, fifty, sixty years. Do People live into their nineties these days? Maybe seventy or eighty years. a long long time. With good management "YOU" will have your thumb on this disease. Most certainly there unexpected unanticipated hiccups, but if "YOU" are careful and pay attention to yourself there might not be to many surprises. Get to know yourself and comfortable with yourself. When it comes to it "YOU" have to be able to be there for yourself because with ms others may not be.

4. Take notes on yourself, keep a dairy, ms memory truly sucks.

Royce

be happy, live well learn constantly and their is nothing to be afraid of and crying is quite okay. Do not rush yourself this illness takes time

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RoyceNewton
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carolek572 profile image
carolek572CommunityAmbassador

Always learn and adapt, adapt, adapt. Thank you for this post, Royce :-D

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