Best word: "MS" or "autoimmune disease"? - My MSAA Community

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Best word: "MS" or "autoimmune disease"?

anaishunter profile image
11 Replies

I had an interesting interaction with a co-worker today over lunch. We talked about healthcare and healthcare insurance and how painful it is nowadays to deal with insurance. He ended up revealing that he had an autoimmune disease. And I just said me too.

It felt like it was an easy way to relate without giving too much information. If we use "Autoimmune disease" instead of MS, there will probably be a lot more people who will understand what we deal with. 26-50 million American have an autoimmune disease compared to 2-4 with MS.

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anaishunter profile image
anaishunter
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11 Replies
RoyceNewton profile image
RoyceNewton

I guess so, I have never thought that I needed to make anything easy or comfortable for any body but myself, but you do have a point

Kenu profile image
Kenu

Good point 👍 Ken 🐾🐾

carolek572 profile image
carolek572CommunityAmbassador

I like your approach and explanation, but I feel like that it is a homogenized approach to this condition that is called 'ms'. Perhaps it could keep those 'busybodies' at bay... :-D

falalalala profile image
falalalala in reply tocarolek572

That and a cattle prod.:D

goatgal profile image
goatgal

Because autoimmune conditions are so widespread, describing MS as an autoimmune condition may be easier for others to understand. I don't like to think of MS as a disease because unlike many diseases, it isn't communicable so I never call it by that term.

falalalala profile image
falalalala in reply togoatgal

I like the way you think. :)

rjoneslaw profile image
rjoneslaw

u make a valid point.

i agree with you when you say it that way the person begins to understand as you begin to explain what MS is if the convo goes deeper.

It also saves you time and energy of having to defend and explain to someone who is a complete A**HOLE about the whole thing. You know those people are out there running wild with their belief that they know everything and whats best for you. Then you just want to scream F*** YOU and beat them to a bloody pulp .

If you do beat the person to a blood pulp you have a good defense;

1st due to my condition there is no why I could have done that because I have severe fatigue and I would never have the energy or strength to do something like that

2nd I have balance issue I'm unable to stand up long enough to even do that

3rd I have walking problems . How am I going to go after them when they run if I can't even walk or run after them for that matter. I don't know anyone who waits around for a beating do you?

4th I have muscle spasms, weakness, and stiffness which make it impossible for me to lift my arms or legs to do such a thing

5th I have vision difficulties so it's difficult to focus and land any kind of blow

to seal the defense

6th I have vertigo and I'm dizzy so explain my ability to do such a thing

7th I have incontinence issues so you would see a trail or pool of urine or bowel at the crime scene. Did you find my DNA at the scene.

I'm just saying

falalalala profile image
falalalala in reply torjoneslaw

Cattle prod might be the way to go.

rjoneslaw profile image
rjoneslaw in reply tofalalalala

that work

mrsmike9 profile image
mrsmike9

I felt like "Autoimmune disease" is the title of the book and "MS" is a chapter in the book. My "book" has 3 has "chapters" under the title. MS, RA and Collagenous Colitis.

IFwczs profile image
IFwczs

Everyone knows MS by now thanks to many celebrities with it. Some autoimmune diseases are more common and known, such as RA and MS. I always tell, and no one has asked me before what that is.

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