The Air Hurt!: OMG! Wasn't someone... - My MSAA Community

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The Air Hurt!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’14 Replies

OMG! Wasn't someone supposed to remind me to get the steroid taper? You forgot! And your fired!πŸ˜‚πŸ€£

My main objective is to take Kai around the block again! And it WILL BE DONE! ☺️ Just cause I'm stubborn like that. 🀣

My last infusion was on Thursday.

So I took Kaijue for a pretend walk. (End of the block) And the wind hurt! The air Hurt! Wholy Moley!

Steroids hurt, when they wear off! 😭😭

I need a volunteer to remind me of the taper! Please!!!!! πŸ€—πŸ’•πŸ¦ˆ

J🌠

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Jesmcd2
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14 Replies
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Morllyn profile image
Morllyn

TAPER!

My job is done.πŸ˜†πŸ˜‚πŸ€£

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toMorllyn

And your late! Fired!!! πŸ˜‚πŸ€£πŸ€—πŸ’•πŸ¦ˆπŸ’

Morllyn profile image
Morllynβ€’ in reply toJesmcd2

😒😭

Kenu profile image
Kenu

Seems like we have had this conversation before πŸ€·πŸΌβ€β™‚οΈ. I know that I have mentioned every time I have had steroid infusion that I have had oral to taper off. Now put this on your notes πŸ“ to your Doctor to give you oral prednisone for after your infusion πŸ‘. Are you using MS Manager, put it in there also or just call your doctor nurse today and put it there notes. Sorry we are late reminding you and prayers are with you to get feeling better soon πŸ‘πŸ™πŸ˜‰ Ken 🐾🐾

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toKenu

Umm I can't get into the mymsaa.org/msaa-community/m... I lost my password. And they won't send me a new one.πŸ˜­πŸ˜‚πŸ€£

You have to remind me now Kenu !!πŸ˜€πŸ€—πŸ’•πŸ¦ˆ

Kenu profile image
Kenuβ€’ in reply toJesmcd2

Ok, just let me know when you’re infusion starts πŸ‘πŸ˜‰ Ken 🐾🐾

carolek572 profile image
carolek572CommunityAmbassador

I never have issues with steroids so I know not of this taper, but it is nice to know of in the future should I ever need that. You will need to remind me... :-D

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tocarolek572

Kenu s job!!πŸ˜‚πŸ€£πŸ€—πŸ’•πŸ¦ˆ

carolek572 profile image
carolek572CommunityAmbassadorβ€’ in reply toJesmcd2

Is he better at remembering? :-D

Iona60 profile image
Iona60

I get 500 mg of solumedrol with each Ocrevus infusion with no taper. What the limit is when you should get a taper? Anyone know? erash DianeV

rjoneslaw profile image
rjoneslaw

TAPER

Doubled51 profile image
Doubled51

I’ve never been offered a taper after steroids. But then I had to explain what constituted a relapse to get my first infusion but I believe he’s forgotten so I’m gonna have to give him a refresher course.πŸ€”πŸ€”πŸ€ͺ😜.

Donnie

janetb1968 profile image
janetb1968

Tapers! I second that Morllyn xxxxxx πŸ˜πŸ˜πŸ˜πŸ˜πŸ˜ŽπŸ˜ŽπŸ˜ŽπŸ’‹πŸ’‹

Beckylp54 profile image
Beckylp54

When I had my severe exascerbation they gave me 9 doses of high methopresolizon (can't spell) no taper. I was coocoo for a while plus got insomnia but they helped me.

Blessings ❀becky

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