Speech: Anyone else have the issue of when... - My MSAA Community

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dailygrump40 profile image
27 Replies

Anyone else have the issue of when you answer someone who asks you something or you try to say something your tongue gets all twisted? So aggravating!!!

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dailygrump40 profile image
dailygrump40
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27 Replies
RoseySawyer profile image
RoseySawyer

I hate when that happens. 😕 ❤🌷

carolek572 profile image
carolek572CommunityAmbassador

Yes, it happens to me as well, dailygrump40 . When it does, I can feel getting nervous, so I try to relax, I breath slowly, and that helps to get my words out without sounding incoherent! Hope that this suggestion helps you as well. :-D

greaterexp profile image
greaterexp

It happens at times, and not always just when I'm tired or stressed. I've had to occasionally just tell the person I'm conversing with that I'm having a hard time articulating my thoughts well and ask if we could talk later when my brain is cooperating. It is frustrating!

Lilith08 profile image
Lilith08

Do you mean your tongue gets physically (literally) twisted, or is it more of a cognitive/mental thing?

If cognitive, yes, all the time! The past few weeks I’ve felt more normal than I have for a couple years, thank goodness. Before that, I’ve felt increasingly isolated because I felt like I could never make sense in conversation. Couldn’t clearly express my thoughts or feelings. Seemed worse when I was stressed.

dailygrump40 profile image
dailygrump40 in reply to Lilith08

Cognitive, yes. You hit the nail on the head.

Juliew19673 profile image
Juliew19673

You are not alone - I must FOCUS when I answer the phone at work, major Cog issue for me - sometimes..

Lilith08 profile image
Lilith08 in reply to Juliew19673

Yes, multitasking is a problem! I'm not working at the moment but in general it's better if I don't do anything while trying to talk.

jimeka profile image
jimeka

It’s finding the right or appropriate words that I find frustrating 😐

dailygrump40 profile image
dailygrump40 in reply to jimeka

What really blows is after you've found what you want to say, you try to say it and it sounds like gargen when you say it. The person you're talking to just looks at you. Puzzled.

jimeka profile image
jimeka in reply to dailygrump40

Or someone finishes your words for you, then I just give in a stay quiet. I used to stand up in front of audiences, speak clearly, now I crumble at the thought. 🍫

dailygrump40 profile image
dailygrump40 in reply to jimeka

I always dreaded speaking in a forum. Heck, I didn't even like speaking in a classroom when I was in school. I'd probably keel over now, if I had to. Hahaha

jimeka profile image
jimeka in reply to dailygrump40

I enjoyed it but not now. 🍫

JMTS profile image
JMTS

I only know to well how you felt in the classroom I guess there is a lot of us out there.

I retired early to stay at home with my husband as he was diagnosed with cancer . When he passed away I became very involved with different organisations as a voluntary worker Just in the last few months I have slowly given most of them away. I feel that I may have early stages of MS as with some of the posts I have read on here they are very familiar to the way I am when I get tired - I haven't mentioned anything to my GP about I how I fee.l Some times the less they know the better as they only prescribe you drugs. I absolutely just hate popping pills. When I get overtired I gait a lot and run into things - but for years I have suffered from CFS and swallowed Radio Active Iodine for my over acvtive Thyroid unfortunately they gave me an overdose. I blame a lot of my problems on the Thyroid.

Take care everyone and have a lovely weekend coming up. Regards

pamgarner profile image
pamgarner in reply to JMTS

I am battling ms and thyroid, they have been trying to get my thyroid med right for 9 months,so I have to ask myself is it ms or thyroid for a new issue ex. I told ms dr. about how my thighs have been tingling for a month, He said once I get my thyroid med right,that will stop and I will get better cognitively we will see

JMTS profile image
JMTS in reply to pamgarner

i had been going to the same GP for 25 years he came to our town from Sydney he married a local girl he was the only one that could diagnose me with CFS - lovely man he is like family he is great mates with my son abd his wife. . He wasn't real good with the Thyroid. Another Doctor who came to Australia from Wales told me about this website I felt all my Xmas's had come at once once I read a few of your stories Tku all for that. Before that I was beginning to think that it was all in my head. It was just such a relief to read all your stories about the Thyroid. I have a couple of website's which is worth a try - they are - Isabella Wentz says that our diet has a lot to do with the way we feel. So join the both of them as they are free to join they are giving me you some relief.

JMTS profile image
JMTS in reply to JMTS

Don't know what happened to the address's they were in my last story but I see they have disappeared. maybe there is a reason for that.

leking1 profile image
leking1

All the time! And yes, I do hate it, but that doesn't change the fact's. I forget words, my answers don't make sense, even to me, sometimes!

What I meant to say, and what came out of my mouth, are entirely different.

JMTS profile image
JMTS

Yes I have the same problem - I really think it is when I am tired and also if I am under pressure.

goatgal profile image
goatgal

dailygrump40 Yep, me too. I cannot say multiple sclerosis or aluminum and many other words (especially those with many syllables) without pausing, approaching them slowly and carefully. If I try to include them in the normal flow of speech, they become garbled.

Mssailor profile image
Mssailor

I have this problem. My grandkids sometimes notice my “grand mom words” when they don’t make sense. We laugh together about it.

LissaH profile image
LissaH

yes, all the time. I sound like I'm on something and its embarrassing. When I'm talking to my boyfriend and I get like that I end out saying "forget it" and he says no take your time and say what you want to say. Then I dumb it down because I can't say what I want to say, UGHHH!!!!!!!

TracyBelle profile image
TracyBelle in reply to LissaH

It hurts so much to lose the ability to communicate the way we could before. I was a wordsmith and passed the Texas Bar on the first try. Now I forget simple words. I think the right word but something else comes out. I am now realizing that I think the wrong word, when I am alone in the shower, or doing the dishes. I am also having trouble spelling simple words. In another post today I typed simptoms not as a typo, but I misspelled the word. It happens more and more.

LissaH profile image
LissaH in reply to TracyBelle

I truly understand I am not by far a singer, wish I could even hum a good tune, but even when I try to sing (when I'm by myself) I get the words wrong. I know what I'm singing but the words don't come out right. I just shake my head and depend on the song let the song play without me singing to it. :-(

Lilith08 profile image
Lilith08 in reply to TracyBelle

TracyBelle That’s exactly it—painful. My job was all about my language skills and that’s gone. Mind you, when I noticed that I was dumbing down my words that’s what led me to search for answers. I suppose MS is a better answer than Alzheimer’s which is what I worried about.

TracyBelle profile image
TracyBelle in reply to Lilith08

It is so embarrassing in front of my 17 year old son, who has been taking college level classes since 9th grade. He is totally sympathetic, but I still wish so much that he could have known me back when I was still smart. I am sure that he respects me, but it hurts to seem so mentally helpless. Things that used to take me no time at all now require total, uninterrupted concentration something I can rarely achieve. By the time I have grandkids- well I really don’t want to think about it. I mean how much more brain loss will I have in 10-15 more years.

Peruzzot profile image
Peruzzot

I have that problem too especially later in the day when I'm tired. The harder I try to say it right the more garbled it becomes and the more frustrated I get which makes the problem even worse...it's a vicious cycle. I just stop, take in a slow deep breath let it out and try again. I also have issues with finding the word or name I want. There are some words that I have never been able to pronounce well but could spell them all day long...now I have issues with even the simplest words and I hate that.

anaishunter profile image
anaishunter

Yes, it happens to me all the time. Especially if I'm focused on a specific project and someone suddenly asks me a question on a completely different topic. It feels like my brain is slow to shift gear and topic.

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