Introduction: Hello my name is Kayla and... - My MSAA Community

My MSAA Community

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Introduction

Redk profile image
Redk
12 Replies

Hello my name is Kayla and have been living with MS for about 15 years ! I have a 12 year old son who is basically my life ! As far as MS is concerned 😟 well I just live day by day !!

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Redk profile image
Redk
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12 Replies
Raingrrl profile image
Raingrrl

Hi Redk , Welcome! There is a broad spectrum of people dealing with MS here. We are a wide range of ages and experiences so you are sure to find people that can empathize with your experience. I was diagnosed in 1999 with RRMS. I’m still RRMS and doing well. I also take it day to day. That’s the best approach for me.

falalalala profile image
falalalala

Hi Kayla!

Royjr profile image
Royjr

Hello Kayla and welcome.

jimeka profile image
jimeka

Hi, enjoy your boy, as they soon grow up . What type of ms do you have and are you on a dmt? Blessings Jimeka 👍

Redk profile image
Redk in reply to jimeka

I have rrms with 105 lessions on my brain, tysabri is the medicine I take

greaterexp profile image
greaterexp

Welcome, Kayla! This is a wonderful family you've joined! Be sure to look at all mymsaa has to offer:

mymsaa.org/

mrsmike9 profile image
mrsmike9

Hello and welcome, Kayla! Day by day, sometimes minute by minute is good!

carolek572 profile image
carolek572CommunityAmbassador

Hello Redk and welcome to this forum! We come from all walks of life, each of us at different stages of our 'ms' journey. We come for support, and share our experiences in the hope of providing others with more ways to cope with whatever 'ms' gives us. So, welcome, and I hope to hear more about you soon.

Keep Smiling,

Carole :-D

bxrmom profile image
bxrmom

Welcome to this great group Redk Minute by minute, day by day is a good way to live sometimes. Look forward to meeting you!

Jessie

Shellilee profile image
Shellilee

Hi Kayla. Welcome! I don't post much but I do follow what everyone says and I have learned a lot. I've had MS for 20 years now, and in the secondary progress stage now. I'm in a wheelchair, can't walk and I'm losing my hands ability slowly. But I try to stay positive and see the best day by day. I have a 17-year-old son who has grown up seeing me from walking going to a cane, then a walker now wheelchair. He helps me a lot As I'm sure your 12-year-old does as well. Currently I am on no DMT since I went into the secondary progress stage about four years ago. I haven't gotten any worse being on no drugs but I do pop a lot of vitamins on a daily basis. I have for many many years and I swear that's what keeps me going better than a DMT. Everyone is different though. Let's talk more, I feel a connection. Have a blessed day. Shelli

Redk profile image
Redk in reply to Shellilee

Hello darlin exactly what is a DMT ?I should know and what vitamins do you take? I never really know which one actually is supposed to help.

Shellilee profile image
Shellilee

Disease Modifying Therapy. I took Betaseron for 14 years. Tried Aubugio and Ampyra after the Betaseron but no luck. Hence, no DMT for past 5 years. I take Vit D 50,000 once a week, +2000 vitamin D daily in addition. The high-dose vitamin D is through prescription, and I take B 12 5000 daily, biotin 10,000 daily, cranberry pills 2 a day. This is what I currently take, then my doctor has had me on different vitamins in past years.

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