Today is Saturday 2 Febuary ​2019 - My MSAA Community

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Today is Saturday 2 Febuary ​2019

RoyceNewton profile image
9 Replies

I have relapsing remitting ms (RRms) There are parts of my body that do not work, and have not for a very long time. There are parts that will not work no matter what I do to encourage them to come out and play. She who must be obeyed understands and has some similar issues. Such is the life of an old RRms couple. 20+ years living the life so far. She tells me we have another 40 or so years to go. We shall see, I do not know, I have not read the game plan for hers or my life.

I do now that RRms will be in it for most of our lives. RRms has no cure, it does have many treatments, none of which is perfect, but treatments nonetheless. This is our RRms life. Not what I hoped for, but the burden we must carry, and I accept that. I accept that and so must "YOU" It is a challenge, isn't it. Sit down, have your favourite warm drink. Think for a moment, shed a tear if "YOU" must. This is your, my and Our lot in this life. It is not bad, it is a little scary at times, but "YOU" my friend can do this.

This is never the end, not the end of "YOU" not the end of your dreams. It is a time to wipe your tears away. Pull your shoulders back brace yourself, plant your feet firmly and look ahead. Look to an hour ahead, a day, a week, far into your future. It will become clearer to "YOU" give it time. experiences need to be experienced, hearts may be broken, loneliness and betrayal may be ahead, but one thing will always be there. "YOU" my friend, yes "YOU". Bending as "YOU" need to, crying your tears when "YOU" must but always "YOU". As "YOU" travel the many days of your ms life, your internal flame burns brighter. Dimming a little at times, but burning steadily brighter. This is something that "YOU CAN WILL and Do", for this is your ms life. Nobody else's, "YOURS". Each day live it well, if "YOU" stumble there is always tomorrow. Never surrender, Live your life gloriously. I believe in "YOU", now it is your turn.

Believe in yourself and live your ms life well.

Royce

I believe in YOU.

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RoyceNewton profile image
RoyceNewton
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9 Replies
RoseySawyer profile image
RoseySawyer

I do try to live my life (with my MS) the best I can. Today I took my kids to breakfast at Chic fil a, then took them to a trampoline jumping place (called Cloud9) for an hour, we went to lunch at Subway, finally came home to see my loving husband and relaxed for an hour then cleaned my car out (while hubby cleaned out his work van). My body is worn out but in a good way. I feel accomplished. My kids had fun!!! That's all that counts. 😊❤🌷

RoyceNewton profile image
RoyceNewton in reply toRoseySawyer

that most certainly is living life well, and I am sure that you made great memories. Glad everybody had fun and it was worth any discomfort wasn't it?

RoseySawyer profile image
RoseySawyer in reply toRoyceNewton

It was worth it. I wish I could of jumped with them but I woke up this morning with my back hurting. But seeing smiles on their faces is priceless. 😊❤🌷

jimeka profile image
jimeka in reply toRoseySawyer

We have a place near by that’s called Go Jump. My grandsons love it, and the smile on their faces is worth more than a million dollars. Pleased you enjoyed it, Blessings Jimeka 😊

jimeka profile image
jimeka

This is a good post Royce, I for one needed to read it and I appreciate what you have said. Many blessings Jimeka 😊

RoyceNewton profile image
RoyceNewton in reply tojimeka

As always it is my pleasure

kycmary profile image
kycmary

Well said my friend & I always try to live the best I can!!

hairbrain4 profile image
hairbrain4

Once again, well said. I came to the conclusion a long time ago to not try to be who I can't be because of MS but to be who I am because of MS. It has actually been a blessing to me. I have learned to look at life differently than I had before MS. I appreciate the little things in life now that I had been in too much of a hurry to even notice let alone appreciate. Life is simple now. Simple is good.

RoyceNewton profile image
RoyceNewton in reply tohairbrain4

Agreed that makes at least two of us.

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