ocverus for spms

[esraolgungun]

hi im new thanks for join .i m healty but my mom not.she is ms for 26 years and start ocrevus.spms said doctor.cant walk cant stand 😥i wondered if ocrevus is ok for her.doctor said may be a little percent bec sometimes she make steps. 1 or 2 step very rare.someone in this sutiation try ocverus and have good results

[Jesmcd2 CommunityAmbassador]

Hi and Welcome esraolgungun I'm sorry to hear about your mom. She is lucky to have you looking out for her!

I don't take Ocrevus myself, so someone here will be able to help you better with your question. It's only a DMT tho. Not a cure. 🤗💕 please feel free to look around and ask away!

J🌌

[esraolgungun in reply to Jesmcd2]

thanks for.your comment and wish more helatier days🙂

[greaterexp]

Welcome! I am glad that you are looking for support for your mom and I hope you find that for her and for yourself.

I think we have members who use Ocrevus who have SPMS to slow the progression of the disease and even improve their symptoms. I hope your mom will see some benefits from it.

Your concern for your mom is wonderful.

[esraolgungun in reply to greaterexp]

im hopefull so.slow progression also ok.but if have some benefits awsome

[dailygrump40]

I was switched from RRMS to SPMS. I was on Tysabri til it seemed to quit working for me. I've been on Ocrevus almost a year and YES it has helped my walking greatly. I was taking Amprya until my preauth ran out in Oct. I'm gonna restart it in Feb for the extra assistance it gives. I've also seen people who can't walk . walk again. Now it won't happen right away. The first 5 months on Ocrevus sucked for me. But it was liked someone flipped a light switch because everything turned around and I've been improving since. The best way I've learned to explain it is. All the DMDs work to slow down progression on the D cell side of your immune system. Ocrevus works on the T cell side. So the time it takes for Ocrevus to get in and change how everything is being affected can very from person to person and can be worrisome of whether it's actually working, but don't worry. It most likely is and when it works its magic. WOW!!!

[esraolgungun in reply to dailygrump40]

thanks for your long reply and good news!everyones ms is diffrent and everyones react is diffrent to drugs but im hopefull.who knows maybe my mom is the one🙂i m glad for you wish healtier days to

[Jazzihorsecat]

💙💛💗❤A very warm welcome to the family!😀 Glad your mom has you!💗

[esraolgungun in reply to Jazzihorsecat]

thanks for welcome.im happy to find this platform🙂

[Juliew19673]

Welcome aboard! I am sure your Mom appreciates your help! I was diagnosed in May 2018 and the first thing to try to attack MS was Ocrevus. They think I have PPMS and I've had Ocrevus twice and do see some improvement, but it is slow. They say usually by the 3rd or 4th time it will be more obvious. I get my 3rd in June of this year, then I'll get another brain MRI to see if it will show a lessening of lesions.

[kycmary]

Hello & welcome I've only had my first round of Ocrevus I am expecting good things I will pray for your mom & your family

[esraolgungun]

thanx i also pray for you.hope it works bought of us 🙂

[RoseySawyer]

Hi and WELCOME! I hope that your mom improves. ❤🌷

[esraolgungun]

i hope so☺️thanks

[hairbrain4]

Welcome. Sorry to hear about your mom. I have had the 1st dose of Ocrevus that actually is 2 smaller doses. I have had great results. No side effects, more energy, no more legs spasms or any spasms at all. If she can tolerate the drug without side effects she should see some improvement. I wish her the best & am praying for her.

[esraolgungun in reply to hairbrain4]

thank you.i hooe she also handle it without any side effects.and glad for you🙂i wish this drug work for everyone who fighting this illness

[pamgarner]

Jesmcd2 is correct,it's not a cure.My dr said with any treatment,success with meds is when it stops it in it's tracks, and stops progression,but I am a believer in Miracles, seen it happen, good luck to your mom and what a lovely child she has.

[esraolgungun in reply to pamgarner]

i know🙄dr also told us slow progression or stop progressiin what we can get.but i also believe in miraclessss who knows.wait and see