28: I’ve been diagnosed for 28 years... - My MSAA Community

My MSAA Community

9,350 members21,122 posts

28

dsenders profile image
11 Replies

I’ve been diagnosed for 28 years still looking for answers. I have tried every drug possible let me know what has worked best for you folks so maybe that’s my next

Written by
dsenders profile image
dsenders
To view profiles and participate in discussions please or .
11 Replies
jimeka profile image
jimeka

Hi, I see you have been a member since August but it’s the first time I have come across you. I have never taken anything so I cannot advice but I am sure someone else can. Everyone seems to be getting approved for Ocrevus so maybe you could speak to your doctor or neurologist about that. Anyway it was nice meeting you, Blessings Jimeka 🎄

Lisacpa profile image
Lisacpa

You exceed my time since Dx only by one year. I'm on Tysabri. Previously I've been on: Betaseron, Novantrone, Copaxone, Gilenya. This is my second go-round on Tysabri. Not to be a negative Nelly, but I really think there's nothing for us.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi dsenders and welcome! Your looking great!! I'm on Copaxon. But it's only been 3 yrs for me.

What's your pup's name? 🤗💕

J🌠❄️

greaterexp profile image
greaterexp

Have you discussed Ocrevus with your doctor? Everyone is so different, and what works for one may not work at all for another. There does seem to be a lot of excitement about Ocrevus right now, so it's worth at least checking into.

Welcome, by the way!

carolek572 profile image
carolek572CommunityAmbassador

Hello dsenders ,

Welcome to this forum! I am currently on Ocrevus, and have been on it since February. I understand that it takes about 2 years before I can see/feel any results, however, I have noticed that my balance and gait are better, as is my mental clarity. That is me, and you should do more research, and let your medical team know that you are interested in Ocrevus.

Keep Smiling,

Carole :-D

Kenu profile image
Kenu

I was diagnosed in 1996 and have been on seven different DMT’s. Currently on Aubagio for the last twenty one months and doing great 👍. No new lesions and stable on others on last two MRI’s 🙏. Ken 🐾🎄⛄️

Jazzihorsecat profile image
Jazzihorsecat

dsenders, great pic there, & welcome to the Greatest MSer Warrior Family on the web! Thanks for finally posting, i don't take anything as in drugs either💊💉, I'm managing it MS all naturally! 🍉🍇🍒🍋🍊🍏🍎🍓🍑🍈🍌🍍🍐🍠🍯🍫

If u can get Amazon Kindle, I recommend a book by "Ann Boroch" Healing MS naturally! Our Guts have leaky gut-Syndrome, Our brains & Guts are connected, & when toxins are released thru our guts into the blood stream, then they go to our blood brain barrier. So, I highly recommend this book, & to really change the diet. Again welcome home & now your family too!😀💗❤💚💙💛Love Ya!---Jazmine🌹Rose💜

erash profile image
erash

Hi 👋 and welcome. I’ve been on betaseron and then copaxone and the nothing for 10 yrs and now on Ocrevus. It’s working well for me but as has been said, everyone is different

RoseySawyer profile image
RoseySawyer

Hi and Welcome. I'm on Rituxan. I love your little doggy. Such blessings. 😊❤🌷

MarkUpnorth profile image
MarkUpnorth

Hi! I've been diagnosed some 20+ years ago, so I'm really young??? M.S. wise compared to you, though I don't feel like it. Yeah, I have gray hair, a lot mixed in, but everyone tells me I look so young. I fear the dog. Those small things can be vicious! Coming from a big game hunter. Anyway, I went through all the DMT's of my era, Avonex, Betaseron, Copaxone, Rebif.....till my neurologists (yes plural, I ran the companies that provided the health insurance to all my employees, and I wanted the best, so they got it too. No cost, little/no co-pays....) told me to stop the DMT's, because the drugs were not working for me, and my full time flue like symptoms which I battled through and just lived with for years from the drugs which developed with time, and lived with for years, would not go away. So, I dropped the DMT's, and the whole arsenal of drugs to try and fight the negative side effects of the drugs were able to go with them. A whole house of cards collapsed. Now I am living healthy, on "pre-industrialized" food. Reference the Dr. Terry Whal's diet, or any of the many eliminating processed foods (my biggest customer base, the food industry, when I was still working). They meant well.... Life has been better ever since. I take no drugs now. Only vitamins. And cannabis for the pain. But most importantly, great food. I still eat seconds fruits and veggies from the produce market, because money is tight. But, it is the base of every meal. If a bit of fish or meat is added to the meal, it is just a taste. My neurologist who I still have, after many years, has told me, It looks like you're over it. That he knows of other patients have gotten over it with proper nutrition, or??? So, not at all saying, don't continue with the DMT's, but definitely focus on healthy eating. If you start by simply eliminating ALL processed foods, you're likely to be on the right track!

The research, to find a cure, on MS is on full swing.

Please be patient and do not give up hope.

Stay strong and don't go for any "treatments" that claim a cure, unless it is FDA approved.

We are with you in this fight against MS.

Not what you're looking for?

You may also like...

Day 28/31

Hi All, In the US, March is MS Awareness month. I plan to spend this month in prayer, over myself -...

28 May 2023 Who are you?

G'day RRms (Relapsing-Remitting ms) family. How are we all today? Another 100-degree day, if...

Post 608 Planning Planning Planning 28 Feb 2020

I am sorry, “YOU” have just been Diagnosed (Dx’d) with Relapsing-Remitting ms (RRms). I am not...

Post 639 Life a theme 28 Apr 2020

G’day family. Today in my ongoing efforts to give “YOU” something to think about and me some...

Unnumbered Post-Laugh 28 Feb 2020

Laugh, laugh like there is no tomorrow. Go out of your way to find the humour in everything....