Was it a study?: Just had (last Thursday... - My MSAA Community

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Was it a study?

Johngm profile image
13 Replies

Just had (last Thursday) my second O infusion with no results. Should I continue in 6 month infusion?

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Johngm profile image
Johngm
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13 Replies
Kenu profile image
Kenu

I am not on Ocrevus, but several have posted on it and say it might be up to two years before results, Go into search for Ocrevus ? Ken 🐾

Johngm profile image
Johngm in reply to Kenu

I sure hope it works. Hate to spend this time having infusions for nothing.

greaterexp profile image
greaterexp

I agree with Kenu; the results from Ocrevus infusions can take months or possible years to show up fully.

We hope that, if nothing else, any progression is being slowed, which is extremely important, too.

Keep us in the loop, please.

erash profile image
erash

Agree with others. Immediate response to O is not typical. Is there progression of ur symptoms? Do u have a follow up MRI scheduled? That may help demo effects of O if no new lesions.

Johngm profile image
Johngm in reply to erash

I hope you are all right. Just out of curiosity, how much was your co-pay for the full infusion?

erash profile image
erash in reply to Johngm

0 for the drug and < $200 for the infusion center. I don't recall exactly

ssdw1958 profile image
ssdw1958

Stick with it my neoro asked me what I thought after my third infusion and I said that I wasn’t sure if Any thing was going on But I told him that I still want to do it.

I mean I think everything is staying the same. But when the weather is crazy so is the MS so I’m going to stay with it.

carolek572 profile image
carolek572CommunityAmbassador

Johngm You just need to have faith with this O as it could take up to two years for it to be effective. Make sure that you stay on top of all your neuro appointments, and get the required mri's. I am in the same O boat but I have seen better gait, balance, and my mental clarity is better these days.

Stay Strong and Keep Smiling,

Carole :-D

kdali profile image
kdali

The result is suppose to be no new lesions and a slowing of brain atrophy. Please don’t judge your drug by a few of the freakish experiences we have talked about here!

Juliew19673 profile image
Juliew19673

I'm getting my 2nd/full dose of Ocrevus tomorrow. I've waited the last 2 months very anxiously. It probably took me 3 months to notice, and trust my improvements, so tomorrow is like my xmas present. Hang in there!

DIsneyQueen profile image
DIsneyQueen

I am also on Ocrevus and wanted to see immediate results, which I did not. My neurologist told me that he would not be concerned that it wasn’t working until he didn’t see any results until after the 3rd dose. Actually he said you would probably get worse before you saw improvement because the way Ocrevus works is that it knocks out the B cells of your immune system then builds them back up. So hang in there. You are in my thoughts and prayers

DisMLEVal profile image
DisMLEVal

I go for my second full infusion on Friday, December 21. Hoping my Doc's optimism is not just false hope.

Johngm profile image
Johngm in reply to DisMLEVal

Good luck, Maybe a Christmas present. Keep up your spirits!

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