Urinary problems: Does anybody here suffer... - My MSAA Community

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Urinary problems

Ikeeptrying profile image
β€’20 Replies

Does anybody here suffer from urinary incontinence? I don't very much but feel like it's starting down that road.

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Ikeeptrying profile image
Ikeeptrying
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20 Replies
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RenaeWhit profile image
RenaeWhit

Urinary incontinence was one of my first symptoms. I get bladder botox every 6 months and self-cath. As terrible as this may sound, versus the alternative, it works we wonderfully. My nerves in that region are on a permanent vacation.

Ikeeptrying profile image
Ikeeptryingβ€’ in reply toRenaeWhit

You sound very brave. I'm not there quite yet but when it happens I hope I can face it as well as you.

jimeka profile image
jimeka

I lost a lot of weight this last year and now if I sit on a hard surface I know when I stand up I will need the toilet. And yes if I don’t go right away accidents will happen, and especially if I have had a coffee. Here in the U.K. we have Always Depends. I had a hysterectomy so I don’t have the womb to support the bladder, anyway the Depends saves any embarrassment, let us know how you go, blessings Jimeka πŸ¦‹

Ikeeptrying profile image
Ikeeptryingβ€’ in reply tojimeka

Guess I'd better head to the store and get a supply. Just hate this.

yes, I self-cath 3-4 times a day. and have accidents if I don't make a beeline to a restroom when being called upon. You get used to it and it is not as big a problem as it may sound.

Ikeeptrying profile image
Ikeeptryingβ€’ in reply toMS_Indestructible

As you say it's a matter of getting used to it.

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toIkeeptrying

yes, it was one of my greatest fears, but now I a pro

CynthiaS profile image
CynthiaSβ€’ in reply toIkeeptrying

I use Depends and Costco delivers. Best price and they work, especially when you are in public. No leaks and always bring backup in bag to discard.

erash profile image
erash

Occasional accidents. I go frequently and when I gotta go, I gotta go.

Ikeeptrying profile image
Ikeeptryingβ€’ in reply toerash

That's where I am now. If I have a delay in getting to the toilet, whoops!

jimeka profile image
jimekaβ€’ in reply toIkeeptrying

Welcome to the club πŸ€—

mrsmike profile image
mrsmike

I also some problems, but they aren't that bad. I've taken to wearing depends. They aren't that bad.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

That was one of my probs. Ikeeptrying I take oxybutynin for it now. They called it bladder spasms. Although there are mornings when I'm running to the bathroom!πŸ˜’πŸ˜­

πŸ€—πŸ’•

JπŸŒ πŸ¦ƒ

greaterexp profile image
greaterexp

I'm sorry you struggle with this. It's very inconvenient, at the very least. Have you informed your doctor?

Ikeeptrying profile image
Ikeeptryingβ€’ in reply togreaterexp

I haven't mentioned it to my doctor. Doesn't seem like it's that much of a problem right now. Next appt. I'll bring it up.

MS_Indestructible profile image
MS_Indestructibleβ€’ in reply toIkeeptrying

you might need to ask for a referral to an Urologist

Ikeeptrying profile image
Ikeeptrying

Thank you all for being so forthcoming. I'm not quite so afraid now.

kycmary profile image
kycmary

Yes I do & that started in early in this battle with occasional problems now I wear pads 24/7 as I don't know when or where it will happen. Some times when I stand up it'll just start running. My pcp put me on Oxybutynin 5mgs 3x day it helps BUT I still use the pads

kycmary profile image
kycmary

It's part of the aging process but when we have MS … we adapt!!!

nes78 profile image
nes78

i don't know anyone with ms who doesn't have urinary issues!

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