Before MS: This is my fairytale πŸ€ͺ - My MSAA Community

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Before MS

Kenu profile image
Kenu
β€’17 Replies

This is my fairytale πŸ€ͺ

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Kenu profile image
Kenu
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17 Replies
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Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Now mine reads the opposite Kenu πŸ˜‚πŸ€£ the end!πŸ€—πŸ’•

How come you don't sleep?

JπŸŒ πŸ¦ƒ

Kenu profile image
Kenu in reply to Jesmcd2

I don’t have saliva glands after cancer treatment. So every two or three hours I need a drink as my throat dries out 🀬. Oh well I am upright πŸ‘πŸ™πŸΎ

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Kenu

Wish I had answers for you Kenu biotin doesn't help at all? Or something like that? πŸ˜’πŸ€—πŸ’•

JπŸŒ πŸ¦ƒ

Kenu profile image
Kenu in reply to Jesmcd2

Biotin lasts about hour if lucky. During the day I am always drinking water, tea, ensure, etc. so I don’t have much problem, but at night after couple hours I am dried out πŸ˜”. Between the throat specialist, oncologist we have tried several different things but no luck. Part of the cancer ♋️ and probably have to just deal with it 🀬. Thanks for your concernπŸ™πŸ˜πŸΎπŸ˜‰

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Kenu

My meds make me drink water alllll day long! And I take it every where with me! But I'm definitely sure it's not like yours! 😞 Here's some water for you my friend! πŸ’§πŸ’¦and snow!❄️❄️ Just melt it!πŸ™ƒπŸ€—πŸ’•

JπŸŒ πŸ¦ƒ

kdali profile image
kdali in reply to Kenu

That’s terrible! The artificial saliva solutions don’t help?

carolek572 profile image
carolek572CommunityAmbassador

Kenu

My story reads like that but without 'the end'. And I think that I am now getting a good night's sleep lately. Why, I have started using a mini diffuser from Nature's Truth. I am using essential oil for head relief and it is working. I have been using it a little over a week with positive results! Ahh, I am sleeping soundly again!

Keep Smiling,

Carole :-D

greaterexp profile image
greaterexp in reply to carolek572

Do you have links to information?

carolek572 profile image
carolek572CommunityAmbassador in reply to greaterexp

greaterexp

No, I don't have links to info. It was something that I stumbled on quite by mistake. I thought that I was purchasing essential oils to rub on my temples when I have a headache, and instead purchased essential oils to put in a diffuser. So, I went back and bought the diffuser. I tried it and so far, this mini diffuser has done the job! I sleep well, and soundly, so I am continuing to use this diffuser. The essential oil is called 'Head Relief', and the mini diffuser is called Nature's Truth Aromatherapy. It is about 4 inches tall, and it has a blue soft glow night light at its base. The whole thing, including the oil, cost me under $25 at my grocery store. I hope that this info helps. :-D

Keep Smiling,

Carole :-D

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to carolek572

I have seen those on Amazon!! carolek572 and greaterexp I think they even have one to go right on a water bottle!πŸ€”β˜ΊοΈπŸ€—πŸ’•

JπŸŒ πŸ¦ƒ

RoyceNewton profile image
RoyceNewton

funny I like it good one mate

jimeka profile image
jimeka

I no it’s no laughing matter, but I have to be honest I did, sorry, πŸ˜‚

greaterexp profile image
greaterexp

Get some sleep, my friend.

rjoneslaw profile image
rjoneslaw

You got that right

kdali profile image
kdali

I just discovered extended release melatonin. 😴😴😴😴

IFwczs profile image
IFwczs

Yes, melatonin taken before bedtime worked wonders for me. I have mercury poisoning induced insomnia.

hairbrain4 profile image
hairbrain4

My story is similar to yours except for "The End" My story has a sequel....I have a C-Pap machine so I can sleep about 4 hrs before waking up with a leather tongue. I use Biotin but it only lasts about 4 hours. Sometimes I can go back to sleep but most of the time I don't. My husband only sleeps about 2 hours at a time due to chronic pain from an 8 centimeter tumor in his chest & several lesions in his belly from a hospital trying to kill him after a hernia surgery. I hope you can find a way to get some sleep as it is so important for (everyone)especially with MS.

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