MS Fighter: I was pretty active before my... - My MSAA Community

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MS Fighter

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I was pretty active before my MS.

Now, confined to my room!

6 Replies
jimeka profile image
jimeka

If it helps to talk about what you used to do, I am all ears. I totally understand where you are coming from, how old are you if you don’t mind me asking, and what type of ms do you have. Good to meet you, sorry about the circumstances blessings Jimeka 🦋

in reply tojimeka

I really prepared my extensive story but was cleared off all my writing, due to the poor maintenance of this website!

I'm sorry.😭🌺😊

greaterexp profile image
greaterexp in reply to

Welcome to the family. I'm sorry about your post getting lost, but do try again. We all very much enjoy knowing one another's stories.

Being limited to your room must be a huge adjustment. I'm sorry for what this disease takes away. You can still be an important part of this family. We can understand better than many friends and even close family sometimes.

I hope you find great encouragement and understanding here.

in reply togreaterexp

I was an active kid in school.

I topped my convent school of 1500+ students in my high school - Tenth standard.

I played all games and sports.

You name it and I played it. Excellently.

I gained 91.2% in 12th class too.

I passed my Engineering in ECE department with distinction too.

My team won the overall championship under my captaincy too.

I cleared the entrance and joined India's biggest software giant.

My job required me to travel, extensively. I stay at Hyderabad, India.

I travelled to Bhopal, New Delhi, Dehradun, Kolkata, Alleppey to name a few. Basically, the length and breadth of India.

I was a go-getter!

Later, while I was playing badminton, I took a smash shot and I felt like momentary dizziness and an electric-shock like feeling in my neck. I ignored.

Later, when I was giving presentations, my speech slurred. Weird feeling.

I got checked at my local hospital and they dismissed and said nothing.

You are a young boy with full of energy, everything is alright with you, doctor claimed.

I'm an adventurous person too. I went to treks. I did paragliding. Camping on hill stations was a regular weekend getaway.

One day, I had trouble with my walk. Later I wasn't able to balance properly.

I had my CT Scan and nothing.

I got checked at a super speciality hospital too. They simply said stress and prescribed antidepressants.

I later had trouble to climb stairs at my workplace. I always preferred lift/elevator. Even for a floor!

I was stared. I got weird looks. I cold-shouldered them!

I later consulted a neurologist.

The doctor was doubtful that it could be the symptoms of Multiple Sclerosis.

I thought, medical field is advanced, there might be a cure!

But, I found that there isn't a cure yet!

A person like me, who didn't even get a fever from childhood got MS, that doesn't have any cure!

The doctors suggested an MRI and I was confirmed with PPMS! 😭

My life was turned upside down. All my dreams got shattered. A heavy blow to me and my family.

I was on Rebif, initially.

My job went for a toss.

Later I was on multivitamins, only.

Now, I'm an SPMS patient.

I'm eagerly waiting for a breakthrough in MS.

I was suggested by many to try Allopathy, Homeopathy, Naturopathy, Ayurveda and all.

I'm an atheist and don't believe in these illogical and silly stuff.

You all, please be cautious and do not fall prey to those unscientific treatments.

Jazzihorsecat profile image
Jazzihorsecat

Supremo, I am so sorry that u are confined to your room!😥 That has to be terrible, it sounds like ur SPMS? We will weep with ya! Get mad at this M.onS.terrorist with ya! Here your family too, so a very warm welcome to ya! You'll never be alone again when you are here! Deep Prayers 🙏& Blessings💐 for ya! We all love ya already too💗❤--Jazmine🌹💜Rose

in reply toJazzihorsecat

Thank you Jazinco.

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