Meeting material: Hi All. I know I’m not... - My MSAA Community

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Meeting material

Karen-x profile image
7 Replies

Hi All. I know I’m not here regularly anymore but I do pop in to try and keep up. I am doing fabulously!! I want some input from you all. I have agreed to co-lead my local MS support group. Please give me suggestions of what YOU would like to see or discuss at meetings. I’d like to be able to put together some really helpful material.

Thanks and Love, Karen

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Karen-x profile image
Karen-x
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7 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hey that's wonderful Karen-x 🤗 are you doing it for National? ☺️ I wish you a ton of luck! The best advice I can give you is to have fun with it!!!🤗💕

J🌠👻

Karen-x profile image
Karen-x in reply to Jesmcd2

Hi Jes, we are technically an MS Focus Independent Support Group Network. I think we removed our affiliation with National MS Society because of a lot of political BS. And we didn't feel very supported by our area headquarters. Sweet thing with the MS Foundation, they give us $50 a meeting for food!! Always a winner in my book.

greaterexp profile image
greaterexp

Karen! That's great news!!!

I've never been to a local MS support group meeting, but I think one question I would have is if there is a list of helpful organizations for people like us, such as government agencies, private or church ministries, etc.

I wish you the best with your new group! You'll be terrific!

Karen-x profile image
Karen-x in reply to greaterexp

Thanks Love. First thing I need to do, I think.... is create a website for our group where I can post all those helpful links.

MS_Indestructible profile image
MS_Indestructible in reply to Karen-x

my 2 cents worth, [as a suggestion] websites are difficult to create and maintain. I don't know what media you are using for your group. Let me cringe first, but Facebook is already setup to handle much of what you might want to do. You can create docs with links in them and make them available to view. I'm sure you have it figured out. I wish you much luck with your new venture. Be good to U ~terry

erash profile image
erash

So glad u r doing well 🌈

Juliew19673 profile image
Juliew19673

I wish you every success!

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