So last week I developed severe pain in my right upper back and right arm. Then 1 week later, the shingles rash appeared.
Ironically, it was the day I intended to get my flu and Shingrix shots in preparation to start Ocrevus. Since there has to be a 6 week window b/w immunizations and infusions, and no immunizations with active shingles, it looks like I will forgo the shots this yr.
I volunteer with children, elderly and hospice patients and was worried about exposures once on a DMT that knocks out your immune system. I asked Dr Boster, who is a wealth of knowledge and has become my go to resource for fast, logical info (see his YouTube channel), "will I need to live in a bubble?" once on Ocrevus. He explained Ocrevus depletes mature B cells, not the new ones and T cells are still preserved. So, no need to live in a bubble 😊
So, the shingles rash is fading, the pain is lessening --but not gone (a little gabapentin seems to help at night but I hated adding more meds 🙁). Now my right arm is weak again. Had started regaining strength after the last steroid infusion (which likely suppressed my immune system enough to activate the zoster/shingles).
2 hour pre-Ocrevus MRI last night and I had them pipe in a Led Zeppelin music channel rather than the usual soothing Enya music. Couldn't hear all because of the MRI but felt like I was at a rock concert and helped pass the time.
Sometimes it feels like you can't win with MS. But trying to stay positive 👍
I don't often ramble on this site. It just felt good to vent this AM. Thanks! For listening.