I have had my diagnosis for about 2 1/2 years now. I had some new lesions last year and struggle the most with fatigue, anxiety, balance, bowel/ bladder issues and numbness in my left side. I have been married 14 years. I work FT plus have a 5 year old and 12 year old that keep us busy.
There are no support groups near me or my husband. I know he tries to understand but I always feel like he doesn't get it and has unreal expectations of me. He has asked me to walk with him or exercise but when I get home from work and then deal with the kids, I feel like I could sleep a week. I feel he thinks I am lazy but know that is not true deep down. He just has no idea how this feels. I also don't tell him every symptom because some are embarrassing.
He always still "wants" me but I am so tired!!! Then I start resenting him like sure let me take care of you too. And I love him and he does SO much to help around the house and with the kids, I really couldn't ask for more. So I always feel guilty and useless. I start thinking he should leave and get someone that can keep up with him in life. I don't know how to change how I am feeling and worry it will be the end of us. What is wrong with me???