OCREVUS: I will receive my 1st half dose... - My MSAA Community

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OCREVUS

REDLIPS44 profile image
11 Replies

I will receive my 1st half dose of Ocrevus on July 5th.

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REDLIPS44 profile image
REDLIPS44
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11 Replies
kdali profile image
kdali

Awesome! Let us know how it goes!

jimeka profile image
jimeka

Hope all goes well. Blessings Jimeka 🦋

ssdw1958 profile image
ssdw1958

Hi I have gone through the 2 half doses and a full dose I just had an issue with the second dose but that was just me I am not sturdy on my legs any way it could have been just me. After about an hour of being home I fell asleep. You will be alright fine. When your having the procedure they give you Benadryl which will make you sleepy which is not a bad thing. It makes the time go by faster.

Good luck!

REDLIPS44 profile image
REDLIPS44 in reply to ssdw1958

I did the Lemtrada, it's been 3 years now since the 1st dose, I still feel myself progressing. My legs are very weak, I use a rollator 24/7. It's a shame but the Benadryl does not make me sleepy. I have not had lesions for over 5years, which is a blessing. Hope it stays that way.

greaterexp profile image
greaterexp

Hurrah for you! I've read such encouraging reports about Ocrevus and hope you will count yourself with the others who have received great benefits from it.

We'd all be so grateful if you would tell us about your experience and how you went through the process to get approved, too. We're all cheering for you!

REDLIPS44 profile image
REDLIPS44 in reply to greaterexp

Thank you, my process was short compared to others I have talked to, told my Dr. that I wanted to try this because I felt the progression, within a week I had the paperwork for the blood work, in 3 weeks all insurance approval was complete and I was approved for the Ocrevus co pay assistant program, the people I have dealt with at Ocrevus are very very nice and helpful. So I received the scheduling call yesterday. EXCITED

greaterexp profile image
greaterexp in reply to REDLIPS44

I'm so happy for you! It seems as though you are coming in at a good time with the Ocrevus process, since there has been some time to work out any bugs in the system and get it as streamlined as possible.

Fancy1959 profile image
Fancy1959

Congratulations! Your wait is finally over. I go for my 4th infusion of ocrevus this October and so far so great! Just be patient and give it time to work, they say the best results are seen one and a half to two years or more into the infusions. Don't worry the infusion process is easy. The IV Benadryl they gave me sent me for a loop and I slept most of the time I was there. I don't know how to respond to you but most people conch out. Just rest and nap and before you know it the infusion will be over it's easy. Let us know how it goes and keep in touch and let us know how you respond to the ocrevus. Until we speak again take care and remember together we are stronger!

REDLIPS44 profile image
REDLIPS44 in reply to Fancy1959

Thank you so much

Kellyj44 profile image
Kellyj44

So happy to hear! Hope everything goes well. Keep us informed please.

bxrmom profile image
bxrmom

REDLIPS44 Good luck! Keep us updated when you can!

Jessie

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