What an evening

[Joc-42]

Joc-42 Since 5:30 this evening I have experienced severe loss of bowel control. Three times and after the second I thought I was done. We made a very short run in the car, and it happened all over. What a mess on upholstery. Back to the shower and more laundry. My husband has been very helpful. I could not clean everything myself. I have had this for years, and I call this my MS exacerbation, but my Nuevo doesn’t agree.

[Kenu]

Maybe it has to do with medication and certain intake 🤷🏼‍♂️. Tecfidera did that to me and Doctor said no. I went off it and five days later no problems 😡 Went on Aubagio last fifteen months and no side effects 👍. Like they say, we are all different 👍 Good luck and I know what a mess and embarrassment 😣. 🐾 Ken

[Joc-42 in reply to Kenu]

Thanks for caring, but because it comes and goes with months in between, it is not thought to be medication.

[Sukie427]

I am so sorry that you are feeling so bad. I know that explosive diarrhea can be one of the symptoms, although I've never had it. I do experience constipation from the DMT I think, and my doctor recommended fiber, such as citrucel. I find that using the stuff keeps me regular and prevents heartburn, constipation and therefore reduces bowel issues. I would have a conversation with my doctor. I'm sure you feel horrible and embarrassed, but you shouldn't. And if anybody should understand it should be your husband. Good luck and I hope you feel better soonest.

[Joc-42 in reply to Sukie427]

Thanks for your insights and suggestions. At one time I was the Metamucil queen and it caused other problems.

[greaterexp]

I’m sorry about what you must be feeling. Does your have an explanation if he/she doesn’t believe it’s an exacerbation?

[Joc-42 in reply to greaterexp]

No, because he said most have constipation. I have involvement in lower spine that probably contributes to it. My GI doctor said just use Imodium when necessary. He said a colostomy would be his suggestion if I chose to do. That

[Joc-42]

I trust that you never have to deal with it.

[CraigS]

I’m feeling lucky after reading your post. I have the opposite issue.

Kind of like a mathematician, gotta work it out with a pencil. 😂

[bxrmom]

I'm sorry you have to deal with this, glad you had help from your hubby. I had a nerve issue that ran down my right leg last year that sent me to the ER last year because of severe pain and after my doc sent me for an MRI, he called me after the results told me if I lost control of my bowls to go to the ER right away because it was an emergency. I wonder if yours is a nerve issue as well vs a med issue?

Jessie

[Joc-42]

I will check into that. Very interesting.

[goatgal]

joc-42 This happens to me occasionally. One memorable time, I was rushing to the bathroom, trying to unzip my jeans as I stepped onto the tile floor. With my jeans around my knees, the explosion occurred. I not only didn't make it to the toilet, but slipped on the poo, tried to cling to the door frame to keep from falling, and fell, cracking my head on the door frame as I went down. My glasses broke across the middle and my dignity vanished. This disease has a way of keeping me humble with a generous supply of empathy for others.

[Juleigh21 in reply to goatgal]

I’m so sorry to hear all that. How horrible! I hate this disease more every day!

[goatgal in reply to Juleigh21]

Juleigh21 Thank you for listening and responding, but don't spend time feeling sorry about my episode...if it were on film, it might be slapstick funny in the way that the coyote fails to catch the roadrunner. I have learned to accept the accidents (the fall on the front porch, the stumble on the curb, the bathroom pratfall, and so many more) and to let them go. Each of us here has at least one burden to carry in life, without adding more. This forum is the only place I can tell a story like this because one of the insidious damages caused by MS is the way it silences us. Here, we listen, understand, can commiserate, accept and move forward.

[Joc-42 in reply to goatgal]

I relate to what you have said, but have not fallen this week it was close. I am grateful for a had held shower sprayer.

[Amore55]

I am so sorry you must deal with this symptom. We never know what waits for us around the corner, do we? I hope you can get some answers and help. It makes it difficult to go places. Sending love. Kelly

[Joc-42]

Only Imodium.