could i still be feeling the effects from my very stressful week(it was like a week ago)? it’s the hardest i’ve been hit emotionally that i can remember. my head is feeling ok-much much better-physically I am all over the place🤣.
wishing everyone a pleasant week🙂
Every year I have a rough time when the weather does a big change from summer to fall quickly. Two weeks ago we were in the 70’s and a week ago went to low 50’s and snow ❄️ with cold nights. So the last week has been terrible and today is my first decent day. Not quite there but close, fatigue still an issue. Use to last 2-3 days and this time close to 10. Don’t know if age is adding to it and possibly the vaccine 💉 shots might have added to it? So needless to say exacerbation can easily go a couple weeks, sometimes longer. Hopefully you get feeling better and move forward 👍🙏😉🤗🐾🐾Ken
The weather change between summer and fall always hits me! Today my emotional stress comes from the fact that I lost my husband 12 days ago. My legs are so weak, I can barely walk to my mailbox and back. Good news, I see my neurologist today. Even better news, I get my Ocrevus infusion next week. I keep telling myself things have got to get better! 🙂
Sorry to hear about your loss 🙏 I went thru that a couple years ago lost my wife of 43 years. It’s hard and remember you need to greave to be able to move on. It was really hard for a while to talk about the loss but got easier with time. I was very fortunate that Jody and I had talked about the future as I was the one predicted to pass away with my ♋️. Then all of a sudden Jody passed in her sleep 😴. We had talked about future relationships and to not feel guilty about moving on. There is a reason why you are here and try to enjoy the things you have 👍🙏😉🤗🐾🐾 Ken
I am so sorry, Spirit67. No one cannot imagine what that is like until you go through it. If you need to talk it out, send me a note. I do not have answers, but I listen well. Prayers and warm hugs for you in the coming days. 🙏
i am so very sorry for your loss😢. there are no words🥲
So sorry for your loss. I lost my husband many years ago. One thing I learned from the loss of my son in 2019 is that a loss of this magnitude affects your central nervous system. You go into a shock like state and the trauma is felt throughout your CNS. So when some with MS experiences this type of loss, it is even worse because of the damage we already have in our CNS.. Give yourself some time to recover. Talk to your neuro about your loss as well. Greif counseling will help but be careful about groups of people that are wallowing in their grief. Look into some of the stuff that might be available thru your local Hospice centers.. They have grief counseling available even if your husband didnt use Hospice before he passed.
the weather did change so I think that’s working it’s mischief in addition to everything else😱
It's ok HouseElfWon i took 3 long days to recuperate from changing my closets from spring/summer to fall/winter. i couldn't believe i could hardly walk after doing heavy work for 3 hours. My body has become sensitive to changes in temperature, fatigue, and so many foods it isn't funny. All part of the MS rollercoaster. strap in🎢
An exacerbation can last for several weeks if not treated as soon has possible. The longer it last the more damage it is causing.The best thing to do is contact your neroligist a ask to be put on steroids. They are not a cure but confuse the white cells from attacking the brain and it reduces swelling in that area.
Get the steroids before an MRI so your neroligist can see what damage has been done and work on reducing any damage that had been done.
Contact your doctor and hopefully they will be able to get it stopped.
I hope that things go well and get you better soon.
Decades of relapses, most lasted 1.5 months on average. Starting gradually getting worse, peaking, then ramping back down. Only attempted treating in any way once, early, when diagnosed with optic neuritis. Optic neuritis episode #2. From there on, regardless what it was. just waited it out. Some annoying. Some really challenging. Just kept on going regardless what it was. Had to, had a business with employees which had to keep going. One relapse made it impossible to drive, so I had to be driven everywhere, but never stopped or slowed down otherwise. A leg stopped working, kept on going. So you walk into things as a result, so what? Along as you don't walk in circles. Keep going, got to. Optic neuritis, it's a nuisance. Had it 7x over the years of relapsing remitting. As long as they don't "stick", that's all that matters? Now I have a heck of a collection of things that stuck. But you have to keep on going, and work around them. Not all are bad? Some come with benefits? I developed a GPS bladder that beats any app as one example. You have to keep on always moving forward. Back to your question, almost every relapse lasted about 6 weeks, some shorter, some longer. A few will never go away. Those are the M.S. "gifts".
feeling better today-yesterday was tough-nothing was cooperating. another MS “gift” is because it is so tough to get into another room i never forget why I went in there🤣
so sad for you losing a husband,it has to do a number on your nerve health how could it not? stay a strong as you can.my thoughts and prayers are with you and everyone else.so glad we can share
How long can a human life live with unmanaged pain
Teaching started last Tuesday
Diet: how long to clean the MS-wrecked body?
Home at last!
