2nd Tysabri... feel ok 😊

[janetb1968]

Well folks had my 2nd dose of Tysabri yesterday......done and dusted by 12md and home at 1pm 😊. Apart from a trace of protein in my waterworks......God knows why!!!??? 🙄🙄🙄🙄🤔🤔🤔🤔 letter has gone to my GP......the whole morning was fine 😊😊😊😊😊.

[Kenu]

That’s Great 😀👍 Hope this works out for you 🙏🐾Ken

[Jesmcd2 CommunityAmbassador]

Yeah! 🎉 Time to celebrate?! Glad that everything worked out good for you! 😊

J🌠

[Morllyn]

Glad to hear that Janet! Hope everything stays good.

[Bobby59]

Good morning, I have been on Tysabri for almost 4years now. My last MRI showed no new lesions. I tolerate it very well. If I can help in any way, just let me know.

[janetb1968 in reply to Bobby59]

Thank u xxxx 😊

[DianneB]

Hi janetb1968! I've began Tysabri in June 2010. After a couple of infusions I began feeling like my old self again! I used to do counted cross stitch and crochet but with the way my MS had progressed I was unable to do either one. I was barely able to do too much except to fix something to eat for myself and my husband! After the first infusion i began to feel stronger and by the time I had a couple of infusions I was able to drive myself to the clinic and i was able to take on more chores! This drug gave me my life back!! After being on it for 2 years I had my JC rechecked and my number was growing! That made my then Neuro nervous and wanted me off of it right away!! I moved to a different Dr and explained what the other one said and we talked it over and agreed that if my number climbed too high I would reconsider a different medication. The one I was put on next was not a good choice and I only lasted 3 months on it! I switched back then in 2016 My number went too high!! I was then switched to a pill!! I stayed on it for 6 months!! Too many side effects that would not clear up! I went back on Ty and I take a probiotic and still get my blood checked every 3 months. My number has been going down to now it is 0.81 from 1.5 sixteen months ago!

This is my story about Tysabri!!

[Raingrrl in reply to DianneB]

Hi @DianneB! Its interesting that your current doctor is ok with you staying on Tysabri. I wish I could have stayed on it since I was doing well but my neuro was not impressed that my index was dropping by switching to an infusion every 8 weeks. He still was uncomfortable with the risk. Now I wonder... It seems that "they" don't really know what the risk truly is and some neuros, like mine, are more interested in just taking what they perceive is the "safer" route.

[DianneB]

Ps! I am now a widow and my children have grown and moved out on their own but I am able to take care of myself!!

[Raingrrl]

That's great janetb1968 ! I hope it works for you. Tysabri kept me stable for 5 years without side-effects except for some extra fatigue as it got closer to the time for an infusion.

[greaterexp]

Hurrah!! Great news!

[jimeka]

janetb1968 pleased the infusion went well. Have you found out what’s causing you to have protein in your water? Have you had any side effects at all? Hope this works for you, blessings Jimeka 🦋 🍫 🤗

[janetb1968 in reply to jimeka]

Hi jimeka have no side effects at all I drink lots of water so no idea why???? Hope ur ok and well xxxx 🤔🤔🤔🤔🍫🍫🍫🍫