memory

[drnikki]

Hi everyone. I just joined and this is my first post. I am 50 and was diagnosed with me when I was about 26. I have been lucky as far as this disease goes. I am on aubagio. Prior to taking it I had noticed recall and short term memory issues. has anyone found ANYTHING that helps? Thanks.

[suznj325]

Welcome..sounds like the years have given you some experience that will most likely be beneficial here!!

[Kenu]

Welcome to our group of crazy 😜 MS community 👍 This is a great place to vent and find out lots of good information from people who understand and care 🙏 I have been on Aubagio for over a year now and doing well with no new lesions and old ones stable 👍 I know there are several exercises to help with short term memory, but not sure of any medication 🤷🏼‍♂️ I was diagnosed twenty three years ago and have been on seven DMT as my MS progressed. (RRMS) Feel free to share your experience and questions 👌🙏🐾🐩 Ken

[StacyHayward]

Aricept helps me with brain fog. Not perfect but better than without it. I feel like I process better.

[drnikki in reply to StacyHayward]

Thanks stacy...

[REDLIPS44]

WELCOME

[mrsmike9]

I think memory issues are the worst issue for me! I write EVERYTHING down in a little notebook. At work when I help someone in the office, I've trained them to tell me the 1st thing they need and I write it down, then they tell me the 2nd, etc. Pain in the butt!

Sometimes it's scary, too. We were coming home from a trip to IKEA last Sat. and I saw a highway marker to a place that I knew I should know and was drawing a blank. It took probably 15 minutes to realize where that town was and that I'd driven through it countless times! I didn't tell my husband, or worse yet, ask him where it was. He would have been as freaked out as I felt!

Hate it...

[lbenmaor in reply to mrsmike9]

I understand exactly where you're coming from. I have a notebook upstairs and downstairs in my house. Writing things down is imperative to stay organized.

Leslie

[Lilith08 in reply to mrsmike9]

I sometimes try the notebook thing...then can’t find the notebook. Or I have notebooks going and don’t remember which one I wrote in. Keeps life interesting!

[mrsmike9 in reply to Lilith08]

I have, more than once, found the name and phone number to someone I have NO idea who they are in mine...

[lbenmaor]

Welcome!

I'm glad aubagio helps. I take Alpha Lipoic Acid which helps me .

Leslie

[drnikki in reply to lbenmaor]

How much alpha lipoic do you take? I take 600mg.

[lbenmaor]

I take 600 mg twice a day.

[drnikki]

thx

[Lilith08]

Drnikki, have you had any luck since you first posted this?

Memory and other cognitive functions are my biggest issue. It seems to get worse when I’m stressed, too. I have tried cognitive retraining off and on for three years—mostly, it’s working on strategies and plans for being more organized—with very limited success.

I’ve tried a few different meds for ADHD but I don’t find that it helps. While they may help with focus (not positive that they did) I still have trouble figuring out how to execute a plan.

I just saw a new neuro NP a couple weeks ago and she said for that cognitive issues there isn’t much they can do. I think she meant that unlike spasticity, for example, there isn’t a pill or set of exercises that will offer improvement.

It really bites!

[drnikki in reply to Lilith08]

I agree. I am taking alpha lipoic acid. So far things are about the same and I am still working full time. There is little to nothing that can b done for cognitive issues. scares the he-- out of me...

[Lilith08 in reply to drnikki]

I guess our best bet is to work on limiting further disease activity and hope our thinking skills don't get any worse. I have to remind myself that at least I'm fortunate in being fully mobile—I can't have it all!