Ocrevis

[Pink-1]

Just to let y’all know those that are taking Ocrevis or are following the drug. Had my first full dose this past Monday the12th. It is now Friday and I am beginning to experience extreme fatigue much like after the 2nd half dose 6 months ago. I’m suspecting that the fatigue is setting in now due to the fact that the steroids have run their course. Has anyone experienced this fatigue after the Ocrevis infusion?

[greaterexp]

Though I don’t take Ocrevus, I’ve read often that fatigue is a very common occurrence after the infusions. It may be related to the depletion of B cells.

I hope others will chime in. I hope you perk up soon and that the Ocrevus is working well for you.

[Pink-1 in reply to greaterexp]

Many thanks for your response

[greaterexp in reply to Pink-1]

You might try using the search box in the upper right corner of the page. Type in "Ocrevus," and any post related to that will come up. You'll find lots of posts about it!

[bxrmom]

Pink-1 It may be possible the fatigue is from the steroids as I have had that happen to me from going in for steroid infusions after having a relapse (not Ocrevus) and I was wiped out for days. Not all the time but there were occasions I didn't get the energy like I normally would. Check with your Neuro or search the site like greaterexp suggested. Please keep us updated.

Jessie

[Iona60]

I've heard that fatigue is more common after O infusion with ppms.

[Yooper]

Pink-1: Same thing with me. It's now been about 3 weeks and I am still struggling with fatigue. But, it's getting better. Wish you the best. God's blessings and peace 🙏.

[Pink-1]

Wish you the best as well

[Allen5280]

I have the exact same response to Ocrevus. I believe that may be why we get the steroids to lessen the effects of the infusion. When it begins wearing off we begin dealing with the whole wiping out of the B cells in our immune system. I'm right there with ya on that one

[Pink-1 in reply to Allen5280]

Many thanks for your response. Fatigue started on the 4th day after the infusion. Now day 7 and still bad

[Allen5280 in reply to Pink-1]

I only get 1 to 2 good days afterwards, then downhill I Go!