Hello all, after many tests, waiting 6 months and having even more testing done these are the results.
1. There are 20+ white spots on my brain. No changes in shape, or size. No new spots by comparison with 10-13-16 MRI's.
2. My nerve conduction tests all fall within normal ranges and show no abnormalities.
3. My spinal fluid is clear and show no markers for MS.
4. Both my Cervical and Thoracic spine show major changes from my Osteoarthritis. MRI shows T2-T5 lesion and definite changes in nerve signals from that area. It's possible all of my symptoms are from the spinal lesion!
We looked at MRI's and reports. Had discussion between Dr. myself, my husband and 2 observing doctor students. Dr.G. doesn't feel there is sufficient change or proof in brain to diagnose MS. He feels it will eventually develop into MS or possibly some other neurological disease. He does feel the spinal lesion is probably MS. Until it progresses, he will keep my diagnosis as Possible MS. We discussed Disease Modifying drug therapies and/or symptomatic drug treatment. He was willing to start me on DMT's provided I passed tests for prescribing. We decided on a med that will increase my alertness, fight the brain fog and fatigue. So that's where I am. Still waiting for definite DX. My own research does tell me that some people have symptoms for years before the definite DX. Waiting for insurance approval for the new med which is Modafinil. I've been in a very funky mood in that I anticipated a definitive DX.
Do others experience these highs and lows and lengthy time before getting a Diagnosis?