Tecfidera

[Krispat1975]

I am starting a new med Tecfidera, was wondering if anyone else takes it and what are your thoughts about it

[janetb1968]

Hi Krispat1975 im starting Tysabri soon but I've heard of urs but know nothing much about it xx

[rjoneslaw]

@Krispat1975

I take it and it has worked wonders. I have been on it for a 1 1/2yr now.

If you search you will find a few old post on it.

[ewesttx]

Check out this site facebook.com/groups/2316088... Copy and past, it's closed group just request access.

[bxrmom]

Krispat1975

Hi, I have been on tecfedera for about 6 months now and been doing well on it. It was recommended to take a low dose aspirin with a meal about 30 mins before taking the medication to help with flushing. I only had to do take the low dose aspirin for a few months before the flushing stopped, which still wasn't too bad for me.

I usually take my medication right after a meal and have an alarm on my phone to remind me in case I forget 😁

Jessie

[Sukie427]

I have been on tecfidera since it was approved by the FDA. I had been using gilenya but it tore up my stomach, and then I was on Copaxone which did not work. My doctor tells me that I don't have any additional or enhancing lesions, but I have new MRIS coming up in April. I have no side effects from it, except for every once in awhile I get a flushing after I take the pill, or my skin feels like it's burning. These don't last long and they go away quickly. I have asked the doctor about different new medications, but he is hesitant to put me on them as I am very sensitive to medication and the Tecfidera seems to be working. Good luck with it and let us know how it goes.

[4fishylady]

I have been taking Tecfidera for 2 years now, and have no known side effects. Just had an MRI and have no new lesions. For me, it is working very well. I recently had a flare and had to have steroids to quiet it down, but I think without Tecfidera, I would have had more flares than I have had. One MS specialist said that I have PPMS, although my Neurologist, says that no one knows for sure what kind we have, since there is no test for it. His thought is that, if a DMT causes you to have fewer flares, then it is worth taking. Good luck to you!

[mrsmike9]

That was the first thing I was on. My issue was it made my white blood count drop like a stone! So when you are told to go for a blood test, do it! But I am only one person and others have said it's good for them. Hopefully it'll be good for you as well!

[YLGram]

I've been on it a year (xmas eve 2016 1st dose). My biggest issue is very very dry mouth, 1 of the unlisted infrequent consequences. Seems to have slowed the downward slide but not stopped it, but after 27 years I'll take it. MRI has not been redone as Dr. wanted full year on drug. Some early flushed skin, hot, but rare, none now. Good luck.