POST

[SometimesCrazy]

Since I started taking Cymbalta I quit drinking. Obviously much better for me but I miss being able to zone out. Now for the first time I'm really dealing with my MS. Holy strombolie. I'm dealing with everything. My legs and feet were so swollen for so long my GP was worried about clots. The test two years ago showed no clots and normal blood flow. Now I have no swelling but you can see the blood pooling and my feet so cold so I asked for a echo to try to find the reason. That was Wednesday and no call so I am assuming all good. So googling blood pulling, nauseous etc. and I find Postural Ortho Tach Syndrome or POST. I don't know if it is the same thing as the woman laying down naked that had to get the pixie dust all over her that I literally laughed out loud about. I apologize for not remembering the name of your test. This POST is me. It also simulates MS symptoms too. So I need to breathe and learn to deal with my health on a daily basis. Thanks for listening. I hope everyone has a nice weekend. xxo.

[SometimesCrazy]

head aches, heart racing, insomnia, constipation, diarrhea

[SometimesCrazy in reply to SometimesCrazy]

shoulder pain, noise aversion. the list goes on. Sorry I'm just so pissed off at myself for not taking care of myself and just doing a tiny bit of research.

[Betennant in reply to SometimesCrazy]

I have the no go more than the later. I find that 4 fiber capsules and 4 doculate sodium and a cup of Lipton Goji Red Rasberry team suit me to a T. I hope you get you a regimen worked out. I read a funny post one time about the AH ruling over the other organs competing for first place and having “balls” where balls do not belong is a real pain in the butt. Seriously, I cut down on eating bread (Iwhich I love!) hoping to hang onto the weight dropping thing and ride slide down a few lbs on the scale but it only went up. Finally lost 2 lb of the 6lb Christmas weight gains but I never ate that much at Christmas so it is a metabolic issue. I look like a Dr. Suess character with the bloat from Gastroparesis. Anyway i digress. The research is picking up on leaky gut being a big suspect for some MS cases. So I hope and pray that you get relief. I have held on to those numbers of my supplements for me, but you must work out for yourself. Fiber husk is a bulker but it makes poo easier to slide down the bowel, Docusate sodium is a stool softener. Although many people call them laxatives, neither are. I hope you get help. It is awful.

[Jesmcd2 CommunityAmbassador]

SometimesCrazy 😄 maybe you need to do a little less Googling.😉 Your going to make yourself AllthetimeCrazy 😀

I suggest you keep a journal of your symptoms right now. And then bring to your next Neuro appt. Unless you think you're having a relapse, then you need to call him/her ASAP.😀

J 🌠

[ssdw1958]

I had the same problem with my legs I had no blood clots and my legs were so swollen I could hardly walk. Then I looked into meds I was taking guess what it said about one of them one of the reactions were swollen feet/legs I spoke with my dr and was taken off of that medicine. But I think you should call your doctor if you have any questions.

But like Jesmcf2 said STOP googling you can’t believe everything you read off the web.

[kris1973]

SometimesCrazy My swelling issues started b4 I was on any meds. I am considering changing my username to “pixiedust”. Thoughts?🧚‍♀️🤣

[SometimesCrazy in reply to kris1973]

Lol. I think you should. Maybe I'll go with purple haze.

[Wizardsmom]

Hi, my daughter has postural orthostatic tachycardia syndrome or POTS. She experiences faintness when she stands, her blood pressure goes down while her pulse goes up. Even while she is resting her pulse is around 95 to 100. She has never had blood pool in her legs though i guess its possible. I hope this helps you in some way and you get a call from your doctor soon. Good luck!

[ssdw1958]

I think pixie 🧚‍♀️ dust is better than sometimes crazy even though we all feel crazy.

Take care of yourself go check in with your doctor.

[cljones]

@sometimescrazy I have not heard the story of the pixie dust. What is it all about?

Cindy