For Those Posting MRI Updates...And- An ... - My MSAA Community

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For Those Posting MRI Updates...And- An Inquiry Regarding Alternative Approaches To Healing...

23 Replies

Are you/is your family member/friend using contrast in each scan? I am curious how many are not able to do contrast due to sensitivities, or simply by choice. And... if this choice is supported by their Dr. What are the comments you have received from Dr.'s regarding your choice, ability to read MRI, no MRI requested then, etc.

In addition: How many of us have Dr.'s that are open (or becoming) to more alternative approaches in lieu of simply prescribing meds? (PT, OT, Vitamins, Herbs, etc.) Thank you. ;)

*Added a photo for a smile. ;)

With regard to humor posts, I thought it would be a fun idea to ponder what he was saying to help bring a smile or a chuckle (over a tear) to one another for the New Year, or any day/topic before or after... ;) I can hear quite a few things....;)))))

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23 Replies
jimeka profile image
jimeka

Hidden she is singing Auld Lang syne. Blessings Jimeka x

Iona60 profile image
Iona60

I think she is saying "hello" and waiting for her echo to come back. In answer to your MRI contrast quesion, I think erash posted a link to an article about it being linked to kidney trouble.

In reference to the contrast building up in the brain, my neuro said that since there haven't been any "clinical manifestations" that I shouldn't worry about it.

Love the birdie.

Raingrrl profile image
Raingrrl

Hi Hidden ! All of my MRI series have been with and without contrast. The last 5 years I've been on Tysabri so have had to go for MRI's every six months. I was not thrilled about this but it was a precaution used to watch for signs of PML. (I'm JCV+).

My neuro is open to alternative approaches in addition to conventional therapy NOT in lieu of. I've had PT a few times and take large doses of Vitamin D3 daily as examples. I don't think I personally would be open to an alternative approach as a replacement for the DMT's I've been on. (Even though I'm not enthusiastic about the risks of the biologics.) The reason I feel that way is that MS is sneaky. You might think a particular course of therapy is helping but MS could actually be causing damage in the background that you are unaware of. And when you have the RRMS form, you can't be sure what causes a symptom to go away or subside. Its all about what are you willing to risk I suppose.

jackiesj profile image
jackiesj

Cynthia1111 Love the pic! I thnk docs have to acknowledge alternative meds or addatives in life.Many suggest massage(sp?) and found it to really help when i can get out and afford it.Beware of the pros and cons/scams.Last year i went for a massage that she wanted me to wear a crystal in my bra(OUCH)..and i ran...sorta out of the place.It was a medical therapeutic place.Sheesh. I have had both contrast and not in MRI.Found contrast showed a deeper image but now the warning yes is toxic(well its a chemical) andkidney issues etc.I do the best i can but it it can help i really pray about doing extra things.I research and if i can prepare(water water water, lemos etc) i try that.To help muscle pain I'm trying to find another hydromassage bed at a local health club.WOW does that help muscles.Diet vit D etc worth the search. Sometiems a simple routine of 8 pm a cup of chamomile...makes me feel better although it may be the rest.whatever it takes...in reason.Now this is not for me, but in idaho special cases have gummie marijuana chewies.....Just found this out and know no more about process..best wishes...

Thank you Jackiesj and Raingrrl! ;))) I truly appreciate you sharing.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hidden He's looking up and saying "Aw H*ll, again?😒 Bring it on!)😄

As far as my Neuro using alternative meds... Well, the last time he bit*hed at me for my meds, I told him to prescribe me pot and that will take care of all of it😀😄 he wasn't amused!😄

J 🌠⛄

agapepilgrim profile image
agapepilgrim in reply to Jesmcd2

@Jesmcd2 LMHO! I suggested to my neuro that I wanted to try canniobus oil and he said "don't tell me about it!"

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to agapepilgrim

😀😄😄 agapepilgrim what can ya do?😀

J 🌠⛄🎆

agapepilgrim profile image
agapepilgrim in reply to Jesmcd2

@Jesmcd2 - as I read in my devotional book this morning, here's what I'm a gonna do:Let His Peace rule in my heart, and be thankful. While I rest in His Presence, I will take time to thank Him for the good times. For example, when my eyes become blurry, I will thank Him for those times they are not, like NOW. When my brain doesn't work, and crazy words come out, or none at all, I will thank Him for those times when my brain does work, like NOW. When I burn my arm when taking those nutritious cookies (made of ancient grain, fruits, nuts, oats, coconut rather than eating Chips Ahoy with extra chips!) out of the oven, I will thank Him for all the times I remembered to call my husband and ask him to take the stuff out of the oven! When my physical body doesn't work, my foot doesn't go where and when I want it to or my body is racked with muscle spasms, I will thank HIm for all the times the pain is tolerable and I can get out of bed, and cook a meal or dust one room. When my arm is hurting and I can't use phone or pc, I will thank Him for those days when I can still electronically communicate with the outside world! Yep! I'm a gonna wear the garment of praise and have an attitude of gratitude for 2018!!

in reply to agapepilgrim

So beautiful...

Morllyn profile image
Morllyn

Hidden he is singing , Jo Dee Messina & Tim McGraw - “Bring On The Rain”!

I heard this song when I was on my way to the doctor to discuss what my options were, after getting the call that said that I had breast cancer. My husband and I just smiled.

Another day has almost come and gone

Can't imagine what else could go wrong

Sometimes I'd like to hide away somewhere and lock the door

A single battle lost but not the war

'Cause tomorrow's another day

And I'm thirsty anyway

So bring on the rain

It's almost like the hard times circle 'round

A couple drops and they all start coming down

Yeah, I might feel defeated,

And I might hang my head

I might be barely breathing, but I'm not dead

Tomorrow's another day

And I'm thirsty anyway

So bring on the rain

No I'm not gonna let it get me down

I'm not gonna cry

And I'm not gonna lose any sleep tonight

'Cause tomorrow's another day

And I'm not afraid

So bring on the rain

Tomorrow's another day

And I'm thirsty anyway

So bring on the rain

Bring on

Bring on the rain

No I'm not gonna let it get me down

I'm not gonna cry

So bring on the rain

Bring on

Bring on the rain

Bring on the rain

Bring on the rain

Bring on the rain

in reply to Morllyn

And, there I was...crying.

Thank you...

Prayers, Love, Healing and Hugs...

Doubled51 profile image
Doubled51 in reply to Morllyn

@morllyn. You will never know how much I need to have that song brought to mind.

This has truly been a trying and stressful week of hell in our house and that song sure did help give me some hope. Thank God for the time we had with our young ones for Christmas morning. Without them and our faith I don’t know if we could have made it.

The old devils been in overdrive the last week in our home. It would take a week to tell how bad this weeks been.

But I’m saying now to bring on the rain.

Thanks my friend. I needed that.

God bless

Donnie

Morllyn profile image
Morllyn in reply to Doubled51

Doubled51 , I know what you mean. I had never heard that song before, and am not a fan of to many country songs, but that day it just resonated with both my husband and myself. Sometimes we just need a reminder that we can do this, we have the strength to go on.

Warm and happy thoughts are going out to you and your family.🙂

Doubled51 profile image
Doubled51 in reply to Morllyn

So true “I can’t imagine what else could go wrong” but I’ve learned not to say that cause a lot more can go wrong. Haha. I’ve always loved that song but being I don’t listen to country music I haven’t heard it in a long time but it came now at a perfect time. Thanks.

Donnie

greaterexp profile image
greaterexp

Is that what I look like when I’m searching for an elusive word?

rjoneslaw profile image
rjoneslaw

@cynthia1111

I can't have contrast because I'm allergic to it my dr has no issues with me not having it

cindyrn68 profile image
cindyrn68

I love the bird!

in reply to cindyrn68

Thank you ;)))

Doubled51 profile image
Doubled51

I’ve had it with and without for 5 this year and looks like I’m gonna have 3 more if the doc gets his mind right.

Donnie

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Hidden I'm sure the birdie is saying "Yup, no nite for flying, Dem fireworks are Awesome, Happy 2018!!!"

As for the MRI's, I've had 3 sets with and without contrast dye, no problems, I fell asleep the last time.

jackiesj profile image
jackiesj

morilyn so thankful...sometimes words/songs/poems/help us dance even when we cant move.TY

in reply to jackiesj

"You can dance anywhere, even if only in your heart." ~Author "Unknown"...

This one is a great challenge for me. As a former dancer, one of my greatest passions was to take my students to volunteer/share with seniors at Assisted Living Centers.

I used this phrase to inspire others, in my work, and on our shirts.

Never did I think that I would be trying to tell myself the same, only one year later... for years on end. I have blocked it all out due to the pain. Thank you for having me reflect, however painful it may be...

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