ms illness death hope.....A OK ON A HOUSE! - My MSAA Community

My MSAA Community

9,019 members20,711 posts

ms illness death hope.....A OK ON A HOUSE!

jackiesj profile image
20 Replies

Often I share hardship, even for newbys I share this not to gloat but to show moving on with illness is soooo possible.Final loan check thru and on Friday I go to my loved ones funeral and sign papers and get the keys to a new home.IWe honestly got on our knees at a difficult time and knew we needed a home with no yard, no repairs major, wider isles for wheenchair and a room for a caretaker when the time comes..a garage my husband never had.quick process because I cant handle much and we need to sell now not later into winter.EVERYTHING we asked for came into place.MS, the quad bypass, learning of jc virus, hemoragging, death of my dog all in this last year and few months.This feels like a miracle....even with all the health things coming.I share this for those who lose hope...Just when a midst of darkness comes there has to be some light to look for.....thank you all....

Written by
jackiesj profile image
jackiesj
To view profiles and participate in discussions please or .
20 Replies
jimeka profile image
jimeka

jackiesj as I have said before, prayers go up, blessings come down. Don't get yourself too stressed with the move. Here's to a better year, blessings Jimeka 🦋 🌈

erash profile image
erash

So glad for you jackiesj

Hope dreams and wishes keep coming your way 👍

agapepilgrim profile image
agapepilgrim

jackiesj i thank our Father He has answered your prayers and supplied your neeeds!! I would like to as about the JC virus. I recently started Tecfidera and cannot get my neurologist to test for it. I have 3 other viruses, one active, and from taking to Biogen, the symptoms are similar to what I have had for 2 years already with progressive MS. How did you convince a doc to order the test?

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to agapepilgrim

You can google the JC Virus and find out more about it. Short version is that sometime, somewhere in your life you were exposed to the virus and your body built up "antibodies" to fight it off or you actually had the virus. Most important information that I have found is you or me are more likely to develop a brain crippling fatal situation called PML for short. If taking Tecfidera, you should consider only taking it for 18 -24 months maximum! THAT'S IF YOU ARE JCV POSITIVE! Tecfidera and Tysabri by Biogen react with JCV and possibly cause the the PML disease to develop. I'm not a medical professional, but have learned enough to demand a JCV blood test before taking Tecfidera or Tysabri.. Start here and research.. biogenoptions.com/en_us/hom...

Because I am JCV positive, I didn't want to take either med.

jackiesj profile image
jackiesj in reply to CalfeeChick

Thank you SOOO much for the info...oh boy do we have one day at a time or id really stumble over myself!

WAshingtongirl profile image
WAshingtongirl

You've had a rough year, jackiesj . So happy for you and the purchase of your new home. Praying you sell yours quickly and that the physical move goes well. Take care of yourself. 💕

bxrmom profile image
bxrmom

jackiesj So glad things are turning around for you!! Sometimes things happen when you least expect them to. So happy for you!

Jessie

Nom_De_Plume profile image
Nom_De_Plume

@jackiesj

Thank you for posting the good news and for using it to uplift others! 💜

I'm happy to know that you got this "bright ray of light in a dark year." ✨

You are a sweetheart May God richly bless you. I hope you and your husband are very happy in this new home! 😀

Hugs,

Lisa

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Thank you for your post. Reading it reminds me personally that when I'm down, to look for the blessings in my life and how I can try to be a blessing to others.. Always light at the end of the tunnel.

Doubled51 profile image
Doubled51

jackiesj so glad that thru the darkness things are looking brighter.

I know I'm a broken record but always put your faith in God and he will see you thru the good times and the hard times. He lifts us up when we are low. Good luck and God bless.

Donnie

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to Doubled51

I started doing my Bible study last evening, my eyes were too tired so will try again this am. 🙏🌅💒

Doubled51 profile image
Doubled51 in reply to CalfeeChick

CalfeeChick the main things is just do what you can. God knows when we are trying and will bless those that spend time in his word.

Blessings.

Donnie

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to Doubled51

Thank you

jackiesj profile image
jackiesj in reply to CalfeeChick

Yip its so true we all do what we can...Sometimes with the Bible I take a sentence or a paragraph, sometimes I am not off my pillow and God hears my heart in all situations.I have to think of Him as a friend that really really gets it.Thanks for the share!

Nom_De_Plume profile image
Nom_De_Plume in reply to Doubled51

@Doubled51

Never a broken record! Your light is always needed. 🕯

Doubled51 profile image
Doubled51 in reply to Nom_De_Plume

I never get tired of lifting up God. Just like he never gets tired of lifting us up.

Blessings.

Donnie

jackiesj profile image
jackiesj in reply to Doubled51

Boy that is so well said!

Doubled51 profile image
Doubled51 in reply to jackiesj

jackiesj having moved in July I know overwhelming it can be. Just remember we can do all things thru Christ who strengthens us. When it's done its worth it all. But remember to take care of yourself and don't overdo things. Listen to your body. When we push these new ms driven bodies it slows us down by putting us down whether we like it or not. I wiped my self out getting ready to move and almost ended in the hospital instead in our new place. Good luck and God bless.

Donnie

YLGram profile image
YLGram

I recently saw this on a quilters web cite and thought it so shows our MS dilemmas. Always moving forward, no matter what.

jackiesj profile image
jackiesj in reply to YLGram

Forward...I needed that!

You may also like...

On house arrest because of MS

Death due to complications of MS

know this is not something those with MS want to even consider and I had always thought that people...

When House Modifications for MS Go Some Other Way

months, he knew all he had to do was just rattle it a little and a human would come and get him a...

MS/Illness..get thru each day

little/pain/expectations....oh it all can hit as the seasons change with all of these.you are not...

MS and mental illness