MSAA and the Spasticity Alliance

[kaitlynmsaa]

Hello there community members!

It’s been awhile since my last post! For any of our new members, my name is Kaitlyn and I am the Public Relations & Marketing Coordinator at MSAA. It’s been so lovely to see this community grow and watch all of the wonderful support and friendships that have resulted over the past year!

As some of you may already know, MSAA is a member of the Spasticity Alliance, a group of patient advocacy organizations that have come together in support of those whose lives are affected by spasticity. If you would like to know more about the Alliance, feel free to visit their website at spasticityalliance.org.

The Alliance has asked us to share a story on their website from someone living with multiple sclerosis that regularly experiences spasticity as a symptom. You can see examples of the stories that the Spasticity Alliance has already featured on their website here: spasticityalliance.org/our-...

If anyone on this community feels comfortable using their name and sharing their story about their experiences with spasticity on the Spasticity Alliance website, please send me a direct message sometime this week. We can work together on writing a story so that anyone visiting the Alliance website with multiple sclerosis is able to see that they are not alone in their experiences with this symptom! If anyone has any questions, feel free to leave a comment below.

Thank you everyone!

-Kaitlyn, MSAA

[Jesmcd2 CommunityAmbassador]

Thank you for the reminder kaitlynmsaa . Having spasticity in my right leg is what start my road to being Dx'ed with MS. It was a very quick rd through.

Jes 🌠

[WAshingtongirl]

I don't suffer from spasticity, but hopefully some here who do can help you, Kaitlyn.

Anyone able to help kaitlynmsaa out? She'll help you write your story, so don't let the fear of telling it yourself keep you from contacting her.

Reply here or you can instant message her. Thanks! 💕

[CalfeeChick CommunityAmbassador]

Thank you Kaitlyn. I just started having problems with my legs about 2 1/2 weeks ago. Dr. has already started me on Baclofen. I went to the spasticityalliance.org. website and definitely joined. So much information there about spasticity and it's treatments and what we can do to help ourselves. Thank you again, Lynn aka Calfeechick

[kaitlynmsaa in reply to CalfeeChick]

Hi CalfeeChick - I'm sorry to hear you're having problems with spasticity, but I'm glad that the Spasticity Alliance is able to provide you with some helpful info! MSAA also has a lot of information about spasticity and how to manage it on our website, including a spasticity checklist (you probably saw this on the Alliance website as well!) Here's the link if you're interested in taking a look: mymsaa.org/ms-information/s....

-Kaitlyn, MSAA

[CalfeeChick CommunityAmbassador]

Thank you! Yes, I already downloaded the checklist. Am so glad there is information I can print out to share with husband and friends to increase their knowledge and understanding. It's hard to explain that all these medications I take aren't a cure, but to give relief from symptoms.

[kaitlynmsaa]

starlight5 You're very welcome!