just being diagnoised

[redman43]

hello I'm new to this, I'm still trying to accept the fact that I have MS

[jimeka]

Hi Redman43, welcome, any questions, which I am sure you will have many, you can usually find an answer here. Everyone on this forum is very caring, compassionate, friendly and supportive. If you want to vent, obtain information, share your interests or have a laugh, it all happens here. So enjoy, I am sorry of your circumstances, did they tell you what type of ms you have and what treatment are you receiving? Blessings Jimeka 🦋 🌈

[greaterexp in reply to jimeka]

redman43 , I'll echo what the lovely Jimeka wrote. I'm sorry you have reason to find us, but you'll find many others here who are in the same boat as you. We've all been where you are and know how overwhelming it can be at first.

I was diagnosed last September, but we have many "veterans" here who are so generous in sharing information. I've appreciated being able to vent and ask questions without burdening my family, who are still fairly bewildered about my diagnosis.

I pray you have a great neurologist who can help you make the best choices about treatment and that you have a good support system.

Please keep us posted about your progress.

[Amore55]

Hi Redman43! Welcome to our forum family. I am so very sorry you are here because of an ms diagnosis, but I promise you the people here will help you with your questions, concerns and the shock we all know it feels to be diagnosed. Ask anything, we literally talk about everything, I would say nothing is off limits ☺️. So, welcome friend and please keep coming back! Kelly

[erash]

Welcome to our family redman43

I'm sorry you have been diagnosed and have become part of our sorority/fraternity...But this is a great place to ask questions and share your thoughts and concerns.

Acceptance can take awhile and I know for me, it's not a straight road. There are definitely hills, valleys and obstacles that create detours.

We can hopefully support each other on that journey 😊

[Morllyn]

Welcome redman43 ! Sorry about the diagnosis, like everyone else. You will be OK, just remember, together we are strong, you are strong.

[Jesmcd2 CommunityAmbassador]

Hi redman43 l can't say hi any better than our friends did already! Except welcome to the MSAA Community ☺.

How long ago were you dx'ed? And with what? Not that it really matters here, I'm just nosey! We are all in the same boat here, just camping on different places on the river.😊

I'm sure your feeling many emotions right now, and that's ok. We have all been there, and many of us are still there. ( I still get pissed) But here, it's a safe place, to just "be" to ask your questions, to share your good days and your bad days! You will ALWAYS find Support here!

Welcome again! We are happy to have you here!😁

Jes 🌠

~Helpful Hint~ If you put an @ in front of person of who your addressing, they will be notified. IE @ jesmcd2 *With No Spaces*

[StacyHayward]

Welcome to the club! Best advice I have is learn to laugh when things go wrong, remember your MS is different than anyone else's, and take meds if you can. It's the best way to slow this monster down. If you can't, do what you can. You will learn to know what your body can do and handle.

[RoyceNewton]

g'day, welcome to the gang. Take a deep breath. It is not as bad as it used to be, get an a medicine yesterday. I Take Tecfidera, easy 2 tablets 12 hours apart. you will learn new things, and some thing might change, just remember everybody hear has done it or is doing it. ASK questions no matter how silly u may think it is. Start keeping records of your ms, it will give u something to do and will be handy in the future.

Big one, CRY CRY CRY then if u have it in you CRY some more. It is normal I think and I hope most people do it. ms is not a death sentence more a life sentence, but it is LIFE just not exactly th way u planned it.

Take care &od as it may seem, u can play this game. It's up to you how well u play.

Royce not sure how long I have been playing but it is around 20 years.

[LISAANNE0309]

redman43 Welcome. I'm sorry that I am welcoming you to this group, but it's a great online forum for support and information. There are so many more resources now than there were 25 years ago when I was diagnosed. One recommendation that I have is to keep a record of your symptoms, test results, side effects of drugs, etc. Initially, I kept a notebook, now I keep a spreadsheet. There is probably an app, but there is too many years of data.

I can't say anything more or better than others have. You have friends here.

[Rongway3]

Welcome redman43 . This is a very common feeling. I'm not happy you are saying you were diagnosed, but happy to welcome/ accept you here! It's a safe group of great people! How long have you been dx'd? I was dx'd 4/07/05 RRMS @ 34 years old.

[1RiskyRich]

Do yourself a favor. Go aboard and get HSCT. I wish I did it 4 years ago when I was diagnosed. Med free since 2/2/2016 & a lot of symptoms have reversed. All others got way better. Look into it before any of your symptoms become un-reversible.

[ssdw1958]

ssdw1958

Hi sorry to hear you have MS I have been diagnosed since 2004 but I know I had symptoms since 2001and my neurologist seem to think I had MS for about 10to20 years before. It is really an eye opener, I just recently have come aboard this site. Which it is a good site , you can ask anything and will get an answer. I am on AMPYRA and Tecfidera and other medicine for tremors Just remember if you have questions for your neurologist make sure you ask them and you are your best advocate KEEP ON SMILING

[alliepoirier]

Welcome redman43

I'm glad you are here, and so sorry you have been diagnosed. I was DX approx 10 years ago, but have had symptoms for many years before DX. I am RRMS, and on AUBAGIO. Prior to AUBAGIO, was on COPAXONE. I hope that you can take advantage of all our collective experience here on this site. Ask anything, no worries, we talk about everything. I find this site not only helpful, but a place where you can ask anything. Sometimes the weirdest symptoms, are something that many of us have experienced, and we might have some helpful hints and tricks to overcome. In the beginning, upon first being diagnosed, it is very overwhelming, and a roller coaster ride. You will have a lot of emotions, and sometimes feel like the doctors got it wrong, denial is normal. Accepting the Dx, and learning to accept help, is really hard, but you will be ok. I agree with so many of our team, keep a notebook, and write things down about your MS journey. It is helpful to keep your meds listed, your symptoms, questions, etc., and keep it with you. Especially helpful when you meet with your Neurologist. Be your own advocate, you have to build your team, and you are in charge. If you find that certain doctors, are not sensitive or knowledgeable about MS, you need to find another one. Don't worry, there are fantastic doctors out there, and you just want to have medical professionals on your team that understand the complexities of MS. We will help you, so just reach out.

Take it one day at a time, and know that we are here to support you. This disease is definitely life altering, but you will find ways work around it. Remember ... MS doesn't define you, or own you ... no doubt, it can get in the way ... but you can have a great life with MS, the meds for MS now are awesome, and much better than 20 years ago, so keep the faith and stay strong ...

Allie

[Fee09]

Welcome Redman43, it is an adjustment. We are all here to help each other and be that person who understands. Never feel like there is something you can't ask. I find everyone hear to be very supportive and it has been a blessing to my overall well being