RRMS

[Phil_3519mountain]

I would love to communicate with someone to find out how they're doing with RRMS. All of this is new to me. I was diagnosed on 08/2016

[WAshingtongirl]

Welcome, Phil_3519mountain . I hope you feel at home here and make many new friends while you find answers to your questions (which I'm sure will be many as you are newly diagnosed).

I experienced my first MS symptom 26yrs ago. This past summer, my neuro switched me from RRMS to SPMS. I'm sorry you have MS, but happy you found us.

[Royjr]

Being newly diagnosed is a scary situation. Living with MS is not a death sentence but it can be challenging. Everyone with MS is different. We might have similar symptoms but most times MS effects everyone immune system different. It could be your age, weight, environment, stress level, other health issues, body type, excercise level etc...either way learn as much as you can about this disease and don't be shy about asking questions. This is an excellent group for asking questions or just to vent. Good luck and hope to hear from you. Keep us informed. Royjr.

[Aldasia1]

Phil_3519mountain , I've been diagnosed with RRMS since 2010. How's everything going with you? Are you eating healthier and exercising? I've also learned that taking vitamins D3(4000IU daily), Omega3(700mg daily), B-12 (1000 mg daily, and 20-40 ml of flaxseed in my orange juice too. In addition to the vitamins, I drink herbals teas like Kombucha, black, jasmine and aged earl grey teas with honey not sugar.

I hope this helps! Cause I enjoy reading about staying healthy plus I'm retired military due to MS.. 😔.. but, hey I'm still here and I believe we're gonna be Healed!! Positivity is Key!!

~ Miracles & Blessings

[erash]

Hi! Phil_3519mountain so glad you've joined us. Many here with RRMS. We all have different and similar experiences. A great place to ask ?s and share. 😊

[Jesmcd2 CommunityAmbassador]

Hi Phil_3519mountain How are you doing? Right about now lm sure you still getting over the shock of it all. And trying to take everything in. I say take your time, cause as soon as you learn 1 thing MS changes the rules 😕😊

You will find a ton of information here! And a family that "gets" it. We are all in the same boat after all. I hope you find our forum friendly and informative but most of all Supportive.

I'm thrilled to hear you have a great support system at home! That's priceless! Have you looked into a support group in your town? Might be something to look into.

We get alot of questions about disability questions here, and l think it depends on what state your in? I'm pretty sure mymsaa.org can help answer questions for you.

[phone] ext. 154

As far as changing any of your vitamins, and/or meds. Herbals or otherwise... ALWAYS CHECK WITH YOUR PCP OR NEUROLOGISTS.

~Helpful Hint~ If you put an @in from of the person who your addressing, they will be notified. IE @ jesmcd2 *With No Spaces*

Jes🌠

[gradma289]

Hi Phil...I have lived with RRMS for 51 years, pursued an interesting and active life, traveled to other continents, volunteer as a zoo guide, drive and on and on. I meticulously follow the medication protocol prescribed by my neurologist (Betaseron injections on alternate days, Ampyra pills twice daily) and I belong to a self-help group of MS patients.

Try to find other MS patients in your area who might be involved in such activities. Ask your MS nurse for local groups. Try the MS society! Good luck!

Gradma289

[Morllyn]

Hi Phil_3519mountain ! Hope you find that we can give you the help/information that you joined for. You can join in or just sit back and watch but I know that you will eventually see a post that has something in it that makes you say, "That's me!"

[Karen-x]

Hi Phil_3519mountain welcome to this wonderful group. I was diagnosed w RRMS in July '15. I feel like I am getting a handle on things. Ask any questions you have. This place is safe!

[greaterexp]

Phil_3519mountain , I was diagnosed in September of 2016, and am still learning my way. Though looking back and seeing that I probably had a CIS about 20 years ago, and probably have had symptoms that went undiagnosed, this full-on initial relapse started in July-August. MRI showed multiple lesions, but my CSF showed no oligoclonal bands. At this point, I seem to be moving out of the relapse, but have some symptoms that remain, but aren't as severe. I recently started Copaxone 40 mg three times a week. The injections and medicine hasn't seemed bad at all.

This site has been so helpful to me for information and encouragement. I hope it is the same for you. Please tell us about yourself, your treatment, and your support. Welcome!