Hello everyone!
Has anyone ever taken Methyl Predrisolone Sol? It's an injectable dialy steroid. A mom at my daughters school told me about it. Her cousin takes it and went into full remission because of it. He drives big rigs too, I'm impressed. I don't like needles but I'm willing to try it.
This is worth researching !! If I remember lol
I had it. When I came out of remission my 1st treatment was this. I had the infusion which was 1hr. Afterward I could tell it was working. On draw back I had to urinate a lot because I had the IV infusion. You may want to have candy on hand when you do your injection because of the taste left behind.
I didn't continue because I don't like needles.
I had this as the 1st line of defense because I allowed my symptoms to get out of control. I refused to accept I had anything more than a muscle spasm that got out of control. As a result I lost the ability to walk but I'm getting better.
GOOD LUCK!!!!!
2-3 X for exacerbations. Didn't help. No major side effects. Maybe some fluid retention.
I took this 2 different times. Had lots of fluid retention. Help stop the flares.
I never heard of a daily prednisone injection. ACTHAR (spelling?) is a similar drug, but I don't believe it's a daily use injectable. My neuro attempted to get it for me at one time, because I was having trouble getting a driver for my monthly Solumedrol infusion, but the insurance company refused coverage. I didn't push for it because I really wanted off the steroid wagon entirely. The post-infusion side effects didn't bother me too much, but discovering i had developed a significant case of osteoporosis was a shocker. By then, most of the weight bearing exercises were impossible to manage for a significant period of time.
Had a 5 day course of methyl prednisolone as an infusion/drip. It was most unpleasant: could feel it moving from the infusion site up my arm, left a very unpleasant taste in my mouth. Had no effect at all on my MS symptoms.
I have had infusions be for i never felt it go up my arm but in the beginning it did seem to give me a little bit it of energy. But then I had taken a few more an got much of nothing so I stopped. One big reason was that i have the beginnings of osteoporosis and was told the steroids are not good for me. But i do have a trick for the metal taste in your mouth and it is to get chocolate a nurse told me that and it does work she told me to get the good kind, so i got three Dove bars. One for each day of the treatments No one has to tell me twice to get chocolate and it does work. I hoped that helped you in some way.
I have a question about the drug any thing that starts with predisolone, does that gain weight I just remember when my mom had cancer she took a drug that started with the same suffix, she had gained weight? Just wondering, but it works that would be great.
Great tips everyone! I have an appointment with my neuro on Thursday, I'll let you know what she thinks about it and "the walking drug".
I had the 5 day, 1g iv drip of the steroid at the hospital. After the 1st dy I was able to raise my foot off the floor for the first time in months. At home I was given an oral steroid taper for 2 months as well as insulin to maintain blood sugar control.
18+ months later I have gone from being pretty much bound to a wheelchair to being able to walk around the house without a cane, as well as limited walking outside. I think I am still improving slowly, although my legs still spasm and my gait still feels spastic and not very smooth.
So in my case, the high dose steroid treatment was a game changer for me. I haven't used any MS drugs apart from Copaxone, which I am dropping for the first quarter of 2017 as a test by my neurologist to determine if I really need it or not.
I had Solu-Medrol one time in 2011 and if I can help it I will never have it again. It did not help me during my flare. I had three day treatment in my home. I had plenty of water during my treatment. I had lemon drop candy to cover the metallic taste that I had because of the med. I had insomnia every night. So I took that opportunity to clean my house because the med gave me so much energy. I had fluid retention immediately after I was finished the treatment but it only lasted one day. My doctor holds off using solu-medrol unless I have a major relapse. For the past couple of relapses, I've been prescribed pill form steroids.
Maybe you can ask you doctor about it. It might well for you.
It will thin your bone after a while...get bone density every couple of years.
When I was first diagnosed I tried infusions of methylprednosoline. They had no effect on my lesions, and I had no side effects. I did not realize how fortunate that was 'til I read these entries. I experienced none of what they have listed. I had not heard of the home shot possibility.
I will find out tomorrow after my appointment
I did it! Changed doctor and meds.
Is there any med you take to help with processing and focus?
So the blood pressure meds didn't work for headaches
Do you wear any medical alert jewelry?
