Has anyone ever taken Methyl Predrisolone Sol? It's an injectable dialy steroid. A mom at my daughters school told me about it. Her cousin takes it and went into full remission because of it. He drives big rigs too, I'm impressed. I don't like needles but I'm willing to try it.
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Shelly36
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I had it. When I came out of remission my 1st treatment was this. I had the infusion which was 1hr. Afterward I could tell it was working. On draw back I had to urinate a lot because I had the IV infusion. You may want to have candy on hand when you do your injection because of the taste left behind.
I didn't continue because I don't like needles.
I had this as the 1st line of defense because I allowed my symptoms to get out of control. I refused to accept I had anything more than a muscle spasm that got out of control. As a result I lost the ability to walk but I'm getting better.
I never heard of a daily prednisone injection. ACTHAR (spelling?) is a similar drug, but I don't believe it's a daily use injectable. My neuro attempted to get it for me at one time, because I was having trouble getting a driver for my monthly Solumedrol infusion, but the insurance company refused coverage. I didn't push for it because I really wanted off the steroid wagon entirely. The post-infusion side effects didn't bother me too much, but discovering i had developed a significant case of osteoporosis was a shocker. By then, most of the weight bearing exercises were impossible to manage for a significant period of time.
Had a 5 day course of methyl prednisolone as an infusion/drip. It was most unpleasant: could feel it moving from the infusion site up my arm, left a very unpleasant taste in my mouth. Had no effect at all on my MS symptoms.
I have had infusions be for i never felt it go up my arm but in the beginning it did seem to give me a little bit it of energy. But then I had taken a few more an got much of nothing so I stopped. One big reason was that i have the beginnings of osteoporosis and was told the steroids are not good for me. But i do have a trick for the metal taste in your mouth and it is to get chocolate a nurse told me that and it does work she told me to get the good kind, so i got three Dove bars. One for each day of the treatments No one has to tell me twice to get chocolate and it does work. I hoped that helped you in some way.
I have a question about the drug any thing that starts with predisolone, does that gain weight I just remember when my mom had cancer she took a drug that started with the same suffix, she had gained weight? Just wondering, but it works that would be great.
Great tips everyone! I have an appointment with my neuro on Thursday, I'll let you know what she thinks about it and "the walking drug".
I had the 5 day, 1g iv drip of the steroid at the hospital. After the 1st dy I was able to raise my foot off the floor for the first time in months. At home I was given an oral steroid taper for 2 months as well as insulin to maintain blood sugar control.
18+ months later I have gone from being pretty much bound to a wheelchair to being able to walk around the house without a cane, as well as limited walking outside. I think I am still improving slowly, although my legs still spasm and my gait still feels spastic and not very smooth.
So in my case, the high dose steroid treatment was a game changer for me. I haven't used any MS drugs apart from Copaxone, which I am dropping for the first quarter of 2017 as a test by my neurologist to determine if I really need it or not.
I had Solu-Medrol one time in 2011 and if I can help it I will never have it again. It did not help me during my flare. I had three day treatment in my home. I had plenty of water during my treatment. I had lemon drop candy to cover the metallic taste that I had because of the med. I had insomnia every night. So I took that opportunity to clean my house because the med gave me so much energy. I had fluid retention immediately after I was finished the treatment but it only lasted one day. My doctor holds off using solu-medrol unless I have a major relapse. For the past couple of relapses, I've been prescribed pill form steroids.
Maybe you can ask you doctor about it. It might well for you.
When I was first diagnosed I tried infusions of methylprednosoline. They had no effect on my lesions, and I had no side effects. I did not realize how fortunate that was 'til I read these entries. I experienced none of what they have listed. I had not heard of the home shot possibility.
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