Hi…I’m Linda 👋

[neveronabike]

I’ve been searching for answers on HealthUnlocked for many years. First in Parkinson’s and then Ataxia groups. Now MSA because recently was told I have Dysautonomia that’s affecting my heart (cardiologist on board but not a neurologist). Wondering about the wisdom of the latter. Have symptoms of MSA but not severe. I’m mobile, drive and that’s about it. Thanks for all your replies from my old username “rideabike”. I changed it to “neveronabike”. Seems way more appropriate. I’m in Albert, Canada. 😂

[LoveMyGod]

How is It affecting your heart? I have PACs and PVCs more during the night than the day. I think I’m having breathing issues over night that causes them. No formal dx, but I have orthostatic hypotension and postprandial Hypo. Having an autonomic testing soon. The Neuro has not said he thinks I have it, but his exam is not compatible with MSA>

[neveronabike in reply to LoveMyGod]

Thanks for your reply! I’ll be interested in what answers you get. It helps to compare. I have a left side bundle branch block on ecg. Also PVC’s. Over night was worse on a recent test, can’t remember if it was 24 hour BP monitor or the other one that’s 24 hour monitor.

The least little exertion and I’m out of breath even just getting dressed in am. The cardiologist cannot find a reason for the heart issues. They’ve done every test possible except a carotid Doppler US…next week. My blood pressure is so erratic I sometimes feel I could drop at any moment but autonomic tests did not show OH. Also having a sleep apnea test next week. We sound amazingly similar. That’s why I asked what’s next? Because they won’t do anything until they see certain results but I don’t know where dysautonomia, considered the cornerstone of MSA, becomes MSA. Where is the line drawn when you have so many similarities? Hope you find your answers. Please keep in touch. Linda