My name is Carol, my husband John of 51 years was diagnosed with MSA in May of last year. I have only just discovered the MSA trust via the Parkinson nurse. John will be 80 in June, was really quite fit until he was 74 when his health started to deteriorate. It has taken a long time to get a diagnoses. We just take a day at a time and try to stay positive. (Best not to dwell on things).
Does anyone else suffer with fatigue? I've not seen it mentioned.