big changes : Hi Does anyone know when... - Multiple System A...

Multiple System Atrophy Trust

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big changes

DeeMilo25 profile image
3 Replies

Hi

Does anyone know when things are getting near finale stage as I’m so worried about it , Les has been so unwell since Christmas, The hospice have got him on palliative care now and have put him on a morphine patch and under the tongue morphine tables 3-4 times a day, he is struggling more now with his speech it’s barely understandable now and it seems to wear him out trying to speak, he sleeps so much more now and he’s not eating anywhere near as much as he use to, in fact I have to ask him if he wants dinner etc where as before he would ask for food all the time , he can’t feed himself anymore so I feed him but he rarely finishes a meal, he makes groaning noises all the time even when awake . The doctor comes every two weeks now to see him and I just wonder if they’re seeing something I’m not and not saying !

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DeeMilo25 profile image
DeeMilo25
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Whitefeather1 profile image
Whitefeather1

Morning, it's hard to tell when someone's time is up.. with my friend Maggie, before she passed away, we had always asked the hospice nurses to be brutally honest with us. Maggie caught pneumonia at the end, we had the hospice nurse the night before she passed who said she maybe had a few days to a few short weeks but that she may also rally around with the antibiotics. Mag was able to talk, although it has hard for her. I didn't think she would pass away the next morning. It's a natural instinct to want to know when it will be. All I can suggest is speak with the nurses and or Drs, and ask them to be frank with you.

Sending love to you all, Caroline

leroybrown profile image
leroybrown

It's understandable to want to know these things - I know I was the same. But unfortunately, it's not always possible. My wife was very sick with chest infection for a couple of days before she died, but neither GP or hospice nurse expected her to die when she did. But thankfully, her death was peaceful and she died at home, which was her wish.

My wife had similar infection 6 months previously, and was very ill that time as well, but she pulled through that one very well. It's just so hard to know.

Blueirises profile image
Blueirises

My heart goes out to you.

Like the other responses my husband's death came sooner than was anticipated. It was yet another chest infection but he didn't respond to antibiotics that time. Do talk with the hospice nurses and GP, they will not be able to give you a definite answer but may be can allay your fear that they are hiding something from you which you need to know.

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