Loss of smell: We are due another... - Multiple System A...

Multiple System Atrophy Trust

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Loss of smell

TigerGirl79 profile image
8 Replies

We are due another neurology appointment at the end of the year, which I am hoping will help spread some more light on Rob's Parkinson's / Parkinson's plus diagnosis. I have noticed that he is still ticking a lot of the symptoms of MSA but the only one that would suggest it isn't is loss of smell. Has anyone else loss their sense of smell with an MSA diagnosis?

Thanks, Rach

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TigerGirl79 profile image
TigerGirl79
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8 Replies
FredaE profile image
FredaE

covid?

TigerGirl79 profile image
TigerGirl79 in reply to FredaE

No, he lost his smell about 7 years ago (realise that bit of information would have been helpful 🤦‍♀️)

binnyrox profile image
binnyrox

Hi RR

My husband diagnosed 4 years ago lost his sense of smell recently.

Take care

Morganthreewheeler profile image
Morganthreewheeler

My wife lost her sense of smell 20 years before her MSA diagnosis, at the time she put it down to a very bad cold but it could have been an early sign of MSA

Positive diagnosis only came after dizziness, slurred speech, difficulty with writing, urinary issues, fatigue, BP issues etc

Blueirises profile image
Blueirises

My husband also lost his sense of smell many years before other symptoms appeared.

Ruffner profile image
Ruffner

My husband lost his sense of smell twenty years before diagnosis. He was diagnosed with possible MSA in 2021 and probable in 2023.

TigerGirl79 profile image
TigerGirl79

Thank you all for sharing. I am going to mention it at our next neurology appointment along with dry eyes, dusky fingers, lack of movement in left arm, increased slowness, increased muddled thinking with forgetfulness and increased postural tremor. Aside from the sense of smell, all of things are either new or worse since our meeting at the start of the year.

Thanks for all of your replies,

Rach

Photo1250 profile image
Photo1250

Adrienne also lost her sense of smell a while back. Then followed the MSA diagnosis.

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