The saddest of news I’m afraid. My darling sweet and kind husband, Martin 76 years young, passed away peacefully at home early on Saturday morning. In April this year he was diagnosed with MSA and had shown problems with balance etc. from summer 2020, albeit that he had REM sleep disorder since his early 20’s. This awful brain disease took hold much more quickly than we had anticipated. We were blessed to have an army of fantastic and kind district nurses and Marie Curie carers who helped me look after him in the last 3 weeks. But all of you lovely people on this forum have been the most helpful since I discovered MSA online in January this year. Every single post has been filled with solid advice, experiences, knowledge and humour (thank you Paul & Sue!) and I don’t know how I would have prepared myself for the caring challenge without you. So a huge thank you from me for being here and sharing.
Martin will be remembered for many things but for me it was his crazy dress sense and free style dancing that always made me smile. RIP my amazing man, my heart is broken and I will miss you forever x
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I am so sorry to hear about Martin. Your love for him shines through in your post which was very touching. I offer my sincere condolences. He is at peace now 💕please be kind to yourself. Helen xxx
Such sad news that eventually we all have to face. Your shared love shows through in this message and will take you through the next challenges.Take care and look after yourself now.
I'm so sorry to hear of this sad news. Sending all my love to you and your family and the strength to move forward taking your lovely memories and times shared together.
Nik xx
I'm so sorry to hear your sad news. It's hard to know what to say other than we know how you must be feeling. My thought and prayers are with you. Best wishes always Sharon xx
So sorry to hear Martin has passed, and so soon. Our thoughts are with you at this sad time. I hope your memories of happier times keep you going especially through the next few months. Sending lots of love x
<<<hugs>>> to you. So sorry to hear of your loss. It is a utterly nasty disease. I will be thinking of you and please take care and take your time. and more <<<hugs>>>
Hello and heartfelt condolences. What sad news. I dread the day it is my turn to do a similar post. It must have been very hard for you to see Martin deteriorate so quickly but I am sure that knowing he was loved so much helped him.Try to take time to look after yourself in the coming weeks and months.
So sorry on Martin's passing. You can tell how much he was loved by you. I know how you are feeling. He really is in a better place now. Be sure to take care of yourself in the coming days, weeks, months. RIP Martin
Sending hugs and condolences. My best friend and husband. Father to our 2 sons . Age 16 and 22 . Past away very unexpected. 9 days ago.As he was only diagnosed with Msa c just over a year ago. He was just turned 62. He had lots of problems with his Autonomic system. His blood pressure would drop rapidly and rise rapidly. He was having lots of falls . And seizure s. His speech rapidly declined. And after a month last December in intensive care . With covid pneumonia. Left him unable to walk. And wheelchair bound . We are heartbroken. Not expecting him toBe taken by this awful disease so soon . After reading posts and seeing people live many years . After diagnosis. I don’t know how our life’s will carry on . I am very angry and heartbroken. Why he was taken so quickly. Does anyone know of this happening please ? I feel so alone and frightened. Left with two sons . And without my best friend of over 33 years
Hi Callanandmorgan, I’m so sorry to hear your news. It’s frightening how young people are that are dying with this and how quick. There’s a lot of information that leads you to think you have years, not months which adds to the shock.My heart goes out to you and your boys 💔
I don’t know if you realised you posted as a reply to my news from end of august but thought I’d let you know as other people may not see your comment and be able to send their love and support, and you might think that’s odd. So if I was you I’d cut and paste your text, go to the top of the screen and select the blue ‘write’ button and repost.
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Appalling Treatment by medical professionals 
Just want to say Hi.. 
