Respect Form and Three Counties (Here... - Multiple System A...

Multiple System Atrophy Trust

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Respect Form and Three Counties (Herefordshire, Worcestershire, Gloucestershire) update

Yanno profile image
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Hello everyone and especially members of the Three Counties Support Group.

As you are aware the MSA Trust have suspended support groups for the time being which is very necessary but a shame. We can still keep in touch through this Forum where we have so many people who all share similar concerns.

At our last meeting Paul & Sue outlined their issues when Sue presented at A&E. Paul recounted how it would have been so much easier if he had available a completed RESPECT form. This Recommended Summary Plan for Emergency Care and Treatment (in the UK) is now more necessary than ever. We now carry Jackie's form with us wherever we go. For those that haven't completed a form yet (with professional help); there's more information here resus.org.uk/respect/

Stay safe, take care Ian

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Yanno profile image
Yanno
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Diane831 profile image
Diane831

Thanks for highlighting this Ian, and Paul and Sue. In our case the DNACPR was sufficient for the correct help, but it is limited and this looks much more comprehensive for a wider range of situations.

Best wishes everyone during this very difficult and unusual time.

Diane

buckcastle profile image
buckcastle

Hi Ian and Jackie, Thank you so much for putting out this Respect information. It needs a good read. Being a novice I have to find out how/ where to read the form before downloading. It should be useful for everyone not just MSA people. B

Yanno profile image
Yanno in reply to buckcastle

Hello B, It’s good to hear from you and thanks for your comments. One can download the form from the same place as the information is shown. However, you need a professional person health/welfare to complete the form with you and no doubt they would have supplies.

Jackie completed hers at our local hospice in Worcestershire, UK with the palliative care consultant who is very good.

Take care, Ian

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