Christmas is over and I survived despite my MSA. I accepted I couldn't do all the "running around" we feel we must do for the perfect Christmas Day. I bought presents only for my nearest and dearest and had loads of help wrapping and delivering them. I handed my kitchen over to my son who produced a great Christmas dinner, and wasn't offended when I couldn't eat it all nor when I fell asleep at the table.
Now it's full steam ahead to face the many challenges this rotten disease will throw at me. I will not only accept any help offered but will ask for help when needed. I realise it's ok not to be able to do everything myself but I will still do what I can.
My communication skills are getting worse and my short term memory seems to have gone on an extended vacation and no doubt there will be other challenges ahead. But I have decided to decline disgracefully. I'm going to "live" everyday I have left. 2020 is he Year I'm " coming out". No more secrecy I am the way I am not through choice but through a cruel twist of fate. If people can't accept it and fall aside that's their loss. They will lose the friendship of one special lady. Yes I am special.i have to fight my brain from the minute I open my eyes in the morning and I do it with a smile on my face.
2020 bring it on I will find a way to cope or ignore all that lies ahead.
I wish you all a very blessed new year and continue to pray for more understanding of this torturing disease.