New to the forum

[Fgsm]

My 68 year old husband was diagnosed with MSA April 2019 having first had parkinson diagnosis . He has had symptoms for 4 years already and it took us 4 years and 15 neurologist to get here .

[Rafaina]

Sorry you have a difficult time reaching a diagnosis. It seems a v common journey for many. Best wishes

Rafa

[Fgsm in reply to Rafaina]

Thank you . Good to be able to talk to some one .

[Hellebelle]

I am so sorry it has taken so long. Unfortunately, these neurological conditions seem to be difficult to diagnose and they are little known. Welcome to our very caring community.

[Fgsm in reply to Hellebelle]

Thank you very much .

[Yanno]

Hello and welcome albeit, as always, it's sad you have the need to be here. Paul in another post has suggested that you get in touch with the MSA Trust. They have a host of information on their web site and numerous factsheets that you can download. They also have a team of excellent specialist nurses who will give advice.

It's worth looking through some of the past posts on this community as over the months there have been many suggestions and tips on how to cope with this condition. Do remember that everyone's journey is slightly different and so just because you read about a symptom, it doesn't mean your husband will suffer from it.

Please also remember we've all had niggling questions or concerns over the months and so never feel worried about raising your own questions or concerns here - there will be someone who will help I am sure.

Take care, Ian