HELP MRI RESULTS

[SpiritualT]

So after a week in hospital with neurological symptoms and trying to rule out MS, I have been referred to a Neurologist. Unfortunately the wait is 6 months.

Could anybody please help me with my MRI results: it states

No imaging evidence of a mass lesion.

Single white matter rounded hyperintensities inferior right frontal lobe and posterior left frontal lobe insufficient to suggest demyelination.

No signifcant abnormality elsewhere in the brain, brainstem or cervical cord.

No evidence of optical neuritis or orbital pathology.

Anyone im out my mind with worry.

[Marie_14]

Well I am not a doctor so can't diagnose you. However it seems they are discounting MS or they would have told you that's what it is? I am assuming you have seen a Neurologist who specialises in MS? If not why not? If you have to wait 6 months to see a Neurologist what is his/her specialty?

I am assuming you live in the UK but don't know. I am also assuming someone has mentioned MSA to you but again you haven't said if that's the case? Can you give some details of your symptoms? Again people online can't give you a diagnosis but can give you advice.

Hence it helps to know what country you live in and what symptoms you have. The people at the MSA trustees are very good but it might not be that unless a specialist has said they think it is a possibility.

Sadly it can take a long time to see a Neurologist. Again that depends on where you live or so it appears.

I hope you have someone to help you at home? Perhaps you have carers coming in? Information is power regardless of what is wrong.

Regards

Marie x

[SpiritualT in reply to Marie_14]

Hi Marie

I live in the UK. The symptoms I have had are pain behind my left eye and tingling in my arms legs hands and feet. Flashes of tingling in my mouth and twitches in my face. It seems they have ruled out MS for the time being but they have still seen some abnormalities the two white spots on the front of my brain. I’m worried sick. These are all new symptoms for me. Only two weeks old.

[Hellebelle]

Hi, I am sorry that you are having to wait so long to see the neurologist. Is it possible for you to go back to your GP and explain that the wait and uncertainty is effecting your mental health. He/she might be able to get you seen as a priority. Knowing that people are working on your behalf can be reassuring in itself. I am not qualified to give you any advice about your scan but I really think that if you could get to see someone who is a specialist and can explain your scan in more detail and/or do further investigations then you would probably feel you are moving forward.

I wish you all the very best.

[Paul_and_Sue_Wood]

Hi, sorry to hear about your worries and concerns.

MSA is a condition that is diagnosed by eliminating every other possibility.

The NHS will have to run through many tests to eliminate conditions one by one. Some conditions are curable and some you live with. The expert in this area is a neurologist so he is the only one that can help find your condition and cause.

The only word of advice I can give is worrying is natural as there is uncertainty, but with anything neurological uncertainty is part of the condition. Try to accept things have changed but keep asking questions and advice.

Hi see your GP and ask for HELP... This four letter word is powerful.

Paul and Sue Wood

[Janeyl]

Might be worth a private consultation with the neurologist in the first instance to bring forward the appointment. Phone their non-NHS PA to check out the fee. Probably about £200, but worth it to save 5 months of abstract worry.

Try not to google your symptoms.

[FredaE]

MS or Multiple sclerosis is totally different from MSA or Multiple system Atrophy. The latter we know a lot about but nothing about MS. and so can't really help you. There is nothing in your symptoms which I can recognise as MSA but who knows. There are so many things. It could be something terrible or something as simple and relatively benign as Migraine. Good luck with your hunt for answers and hope you will find the truth is not too bad

[Teresa5]

I paid private for mine and the went to see the n h s dr and it was the same one . And I new what what was wrong so did he good luck x