16 j leven met msa !: ik ben nieuw... - Multiple System A...

Multiple System Atrophy Trust

1,629 members1,290 posts

16 j leven met msa !

robbedoes profile image
6 Replies

ik ben nieuw maar heb al 16 jaar msa: zit in rolstoel, kan niet meer praten...ben Vlaming woon in gent.

Written by
robbedoes profile image
robbedoes
To view profiles and participate in discussions please or .
6 Replies
Gerdy profile image
Gerdy

Welcome Rob, I'll translate for you what you have written: I 've been ill with MSA for 16 years now, I am in a wheelchair, can't speak anymore and live in Gent, Belgium. I know Rob from the Belgium/ Dutch MSA supportgroup. Unfortunately we don't have a forum we only exchange information through e mail. Rob ik heb even je tekst in het engels vertaald.

Take care( groetjes) Gerdy

robbedoes profile image
robbedoes in reply to Gerdy

thanks gerdy. kisses rob

Yanno profile image
Yanno

Hello Rob - and thank you Gerdy for the translation. I see you live in Gent, Jackie and I visited there in 2016 on the way to see my son who lives in Germany. We loved the town and walked for miles with Jackie in the wheelchair. We said we would revisit one day along with Maastricht in Holland which we went to on the return journey.

Welcome to this community, albeit as I always say, sorry you have to be here.

Take care, Ian

robbedoes profile image
robbedoes

i thank you for your answer; are you on facebook? rob

Yanno profile image
Yanno

Hello Rob - Yes I am on Facebook albeit I seldom post there and only occasionally read posts. You will find me as Ian Pickford

janehey profile image
janehey

Did you know Leo, then?

You may also like...

MSA-C with ataxia rebound

will tell the truth. I actually suspected I had MSA about 5 years ago and then shelved the idea. Now

Problems with Eating in MSA.

My wife has been diagnosed MSA following a diagnosis of Parkinsons. Finding savoury food that she...

MSA and gut/stomach pain

I have MSA and have been experiencing intermittent pains in my lower gut area. Although they are...

My wonderful father and MSA

wonderful father lost his courageous battle with MSA on 10th January 2017. I'm a little late to...

Low Blood Pressure and MSA

My husband has MSA and he really struggles with constantly feeling dizzy and lightheaded. His...