Anyone know haemotologist in Scotland using Pegasys

[Optimistic]

I am considering Pegasys and wondered if anyone else in Scotland is being treated by any haems who using it.

[Hidden]

As far as I heard this drug is under trial at the moment. I may be wrong.

[light]

What is Pegasys??

[Titatagg]

Pegasus= pegalated interferon a new slow release interferon. I am in London and have also inquired about this drug. I have been told that it has to go through your primary care trust as it is costly. They must OK the prescription and usually they want proof that HU and interfon Alfa have been tried and have not been suitable. I would be very interested to hear from any one who has been prescribed this drug and how they managed to get it prescribed if they are not on a trial. Also what side effects they may be experiencing. I am on a Facebook group for PV and a number of members living in the US are taking it with hugely successful results and little if any side effects.

[Jennie_Barnes]

My dr has just tried to change me from interferon Alfa to Pegasys due to my muscle deteriorating at the site of injection. I have declined it for now as I am at the age of 23 and want to start thinking about having a family and there have been no successful pregnancies on Pegasys. Does anyone know any different?

Thanks

Jennie

[ETphonehome in reply to Jennie_Barnes]

Jennie, It is my understanding that Pegasys is pretty much the "go to" med for folk with MPN's who want to start a family.

I would have no qualms about starting Peg. I found it far less problematic than Inf-Alpha. However as with any medication change it is wise to talk it through with your GP, Consultant haematologist or a pharmacist.

[lavender007]

I attend the beatson but dont know about other peoples drugs,I am not on it.You may still wish to enquire with the haematologists there.try the secretaries.

Lav007