Fasciitis plantaris in Pegasys users .

[yarrowleaf]

I have become curious Some time ago I wrote a post complaining about pain in heel and arch.

Many kind people suggested "Fasciitis plantaris" as reason-- and were right and I am now in treatment. So many thanks.

But while my physiotherapist and I were speaking about reasons and symptoms, a thought occurred to me--- and to her too---that the disease can have something to do with the Pegasys injections (maybe also the other treatments), because after an injection you get a sort of "anaemia" --and there vill be too little oxygene and nutriends in one's body--- especially in parts as "mistreated as heels (the spongy stuff is very sensitive--according to the physiotherapist) .

So now I would like to ask : Whom of you suffer from a Fasciitis plantaris ? How often are you having injections ? And are there any remarkable difference in symptoms during your medical period ???

Best regards-- and a good day to all of you !! yarrowleaf.

[piggie50]

Hi yarrowleaf,

We have spoken on your previous post. I had plantar fasciitis for about 10 months, and previously about 8 years ago. I'm not on Pegasus but Hydroxicarbamide. I pleased to say that since the last communications my feet are now fine. I done lots of exercises, cut back on my walking a bit and in May I had custom made orthotics made which I wore continually for about 4 weeks, even in my slippers! I now just wear them in my trainers. I also had a lighter pair made to use with sandals etc. Not cheap, but I feel the orthotics helped enormously. I may be wrong but I'm putting my 'cure' down to them. I was getting very depressed with the pain and now I don't give it a second thought. I also make sure not to wear totally flat shoes as these are not good.

I hope you get relief soon.

Kind regards

Judy

[yarrowleaf in reply to piggie50]

Ok piggie50 One can't make a precise research under at least 5-10 years. I still think mine is caused by medics because of the way it acts : Slowly becoming better until the next shot, when it starts all over-- but maybe it's a 100 % individual thing, like varicose veins and pelvic instability and such

Thanks anyway-- I'm glad you fine and sparkling again-- hopefully with my new physiotherapist I will end there too. Hope is a great mover !!

[francesb]

Hi, I'm on Pegasys 270mcg weekly (high dose!) and have never had this problem. Best wishes, Frances.

[Ebot]

Hi. If it adds anything into the discussion ...... I have had increasing pain in my arches etc for years especially as the day wears on or I have been doing a lot of walking. I find I can't even walk around the house without my trusty FitFlop clogs and certainly not stand on hard floors. I'm not on any drug treatment (other than aspirin and venesection), my iron counts are often low and I've had custom made orthotics for years! Am thinking of changing latter for a softer pair. Never mind not hiking long distances because of fatigue - my feet hurt!!! 😁😁

[yarrowleaf in reply to Ebot]

Hi Ebot !! So -- low iron counts = low oxygen percent and therefore low nutrition supply to your bone, cartilage and tendons. It could be your problem. Don't know how your doc. views iron supply (hemo-iron, it has to be-- not iron oxide ) maybe you should ask him Don't forget that if you're not used to iron supply it can take about a month before it really works wonder. Never worry of taking too much, cause the body takes what it needs and drop the rest

So sorry for you. One finds out how important it is to be "movable"

Yarrowleaf.

[Ebot in reply to yarrowleaf]

Hi Yarrowleaf. Have been on and off iron over the years but since my diagnosis shifting from ET to PV am now firmly OFF! The foot thing pre dates the ET but has been getting worse. I don't know to what extent the MPN exacerbates it or whether it's just a process of getting older and less tolerant of hard surfaces and especially hard plastic orthoses (I'm not sure I was ever in love with them!). I'm hoping to get back on a fitter track with some coast walking over the summer. Maybe the beautiful SW coast path will distract me from both fatigue and feet! I'll see how I get on and perhaps go back to the podiatrist in the Autumn. Thanks for your insightful comments.

[yarrowleaf in reply to Ebot]

Can't you cover the hard plastic soles with 1 or 2 silicone soles ??? I had them too as a kid-- hated them !!

Other body-oxygen-boosters are chrome and copper (supply is to be bought in drugstores and health shops) !

[Ebot in reply to yarrowleaf]

Thanks for the suggestions. I've had this pair of orthoses for fifteen plus years so I don't feel guilty about having them re-made! I'll check out supplements with the Prof next time I see her. You take care.

[piggie50 in reply to Ebot]

Hi Ebot,

Which part f the SW costal path are you hoping to walk? I'm in Devon.

Judy

[Ebot in reply to piggie50]

Hi! South coast. Torbay area. As much as I would love to 'walk' the SWCP this is mostly going to be sauntering out from my back door and turning left or right!! Where are you?

[piggie50 in reply to Ebot]

I'm in Exeter, not far away.

[catkinspolymer]

I had FP badly about 10 years ago . I have ET for 20 years and take HU and baby aspirin.

yours Town Crier

[IlGod67]

I have the foot and arch pain as well and wonder if this is due to the pains that seem to happen beause of the bone marrow specific to our MPNs. I am post ET(7 yr.s) and now Myelofibrosis(almost3yr.s).

[yarrowleaf in reply to IlGod67]

Hi IlGod67 Can't say about the bone marrow thing, but as bone marrow is only to find in the hollows of the big bones --in notable concentrations I don't think it sounds plausible, but one thing is plausible and that's the myelofibrosideliga conditions can cause damage in ligaments, cartilage and tendons I believe your myelofibrosis is the "sinner". I have 2 friends whith that disease and both of them have to wear short soft boots with special soles as support, but when they do-- they do rather fine

Hope you'll sort it out--best wishes--yarrowleaf.