Greetings MPN family,
I currently take a drug called Eliquis, whose generic name is apixaban and which is a blood thinner that protects against the formation of blood clots. I take this in addition to Besremi, which directly treats my PV. Do others take this drug in addition to their MPN treatment?
Thanks for any feedback on your experience with this or a similar drug.
hi SouthSideA I take Apixiban and Besremi (new to Bes, I was on Peg for over a year).
I take a thinner as I found I had PV after being admitted with a clot.
What sort of feedback are you looking for. I personally have zero issues with my thinner (apart from warning everyone when they draw blood - as it can take a while to stop bleeding). My problems are from the Peg/Besremi.
I have had the exact same experience. I, too, had a clot which led to my diagnosis of PV. I think this is why they put me on Eliquis for life. I, too, have had no adverse side-effects.
What kind of problems are you having from the Peg/Besremi?
So Im in the UK and am experiencing massive shortages of Peg - I have taken that opportunity to take Besremi to see if I have a different experience. With Peg I have had extreme fatigue (not helped by having a toddler I'm sure). But its a real to the bone fatigue. I have had bad bone and joint pain on Peg. Neck, groin, knees, thumbs!
I'm so sorry to hear about the fatigue. It sounds like you and I are around the same age (I, too, have little kids), and life with little ones is exhausting enough without an MPN. I hope Besremi is a better fit for you. It's been great for me, and I wish you the same.
Good morning. I take Eliquis everyday and Aspirin 2 days a week and am Hydrea. I don’t experience any issues with them except any skin cuts or marks take a long time to heal and anyone drawing blood has to be told. Best of luck.
Thanks for this helpful reply. I'm glad you're not having any negative issues.
I too take apixaban and anagrelide for my post ET MF but it is primarily to prevent clots forming around a non cancerous growth in m6 heart
Thanks for the reply. How are you getting on with your MF treatment? How do you feel?
Apart from headaches why I think are linked to the blood thinners I actually feel better than I did on Hydroxy when I had ET as that really affected my energy. I still get symptoms but try to pace myself so I can do what is important. At the moment I am more anxious about heart surgery due to risk of bleeding in the event my growth in the heart continues.
Thanks for the reply, and good luck with ongoing treatment. We got this!
Hi, I take Xarelto which is also a anticoagulant. I have a history of Atrial Fibrillation and because of having PV as well, it is very beneficial in preventing blood clots, etc. If you ever have elective surgery, please have all medical professionals " on the same page", particularly your MPN specialist. I had surgery and afterwards some complications due to poor clotting. I am also on Besremi and Jakafi. Otherwise, anticoagulants are excellent in keeping you "clot- free" and protecting against stroke or a heart attack I do question the use of aspirin along with Eliquis? Overload?
Yes, I have taken Eliquis for several years as I had ET which has now progressed to MF. I have never had any problems or side effect with the drug although sometimes I understand it can cause reflux. If this is the case, Nexium can help.
Are you worried about taking Eliquis? I am sure you will be fine as it is a well known blood thinner.
Katie
Thanks for the reply. I'm sorry to hear about the progression but I hope you're feeling positive about your treatment options. What's next for you, and how are you feeling?
I have nothing to add, just wanted to say hi! Hope you are having a great week!😊
Hey, my friend. Great week here. Spring is almost here!
Yes, I take both Pegasys and Eliquis. I am JAK-2 ET and started the Eliquis after pulmonary embolus in October 2023. I have no issues with the Eliquis.
blood transfusions
Advice for Patients with Myeloproliferative Neoplasms - 19th March 2020
Experience with Pegasys
